Father of a Baby Who Was Expected to Die During or Shortly After Birth. Survey

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* 1. Was your baby expected to die during or shortly after birth?

Yes

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* 2. What gestational age was your baby when you found out he/she had a fatal prognosis? If you are not sure, please put "Unknown", as well as feel free to comment.

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* 3. Please check any experiences that apply to you finding out, from your doctor, that your baby had a fatal diagnosis. (Please check any that apply)

The doctor looked concerned

The doctor was cold

The doctor was kind and empathetic

The doctor gave us many options including carrying to term and termination.

The doctor did not give us any options.

The doctor assumed we would carry to term.

The doctor push for termination of the pregnancy

The doctor was very supportive of our decision to carry our baby to term.

The doctor appeared frustrated that we wanted to carry our baby to term

The doctor told me it would be unfair to our baby to carry him/her to term

The doctor said it would be better for the baby if we terminated the pregnancy

The doctor said it would be better for us if we would terminate the pregnancy

We changed doctors because of how we were treated

The doctor was very supportive of us.

I was happy with how our doctor handled the situation

None of these apply to my experience

Other

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* 4. What delivery situations did you experience. (Please check any that apply)

The doctor chose to deliver because the baby was in distress.

The doctor chose to deliver because my wife/partner was in distress.

I knew this delivery was high risk.

My wife/partner carried our baby to term.

My wife/partner carried our baby more than 40 weeks.

My wife/partner carried our baby 38+ to 40 weeks.

My wife/partner carried our baby 36+ to 38 weeks.

My wife/partner carried our baby 34+ to 36 weeks.

My wife/partner carried our baby 30+ to 34 weeks.

My wife/partner carried our baby 26+ to 30 weeks.

My wife/partner carried our baby 22+ to 26 weeks.

My wife/partner carried our baby less than 22 weeks.

I was able to hold my baby within 20 minutes after his/her birth.

Our baby needed immediate medical attention which prevented me from holding him/her within 20 minutes of birth.

We chose to deliver our baby early and let him/her die due to his/her medical problems.

We chose to carry our baby with serious medical issues to full term.

We were able to prepare with perinatal/pediatric hospice, Loss Doula, or loss professional.

Other

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* 5. Did you have a perinatal or pediatric hospice involved?

Yes

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* 6. Prior to delivery, at the hospital, did you make plans for your baby’s birth and care after birth?

Yes

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* 7. What plans did you make prior to admission for delivery? (Please check any that apply)

Medical decisions for after our baby's birth

Comfort measures for our baby

We made plans to hold our baby.

We made plans to dress our baby.

We made plans to bathe our baby.

We made plans for pictures of our baby.

We did not plan any activity with our baby.

We made plans for religious rituals. ( examples: christening or baptism)

We chose which family members were to be present during and/or shortly after birth.

We made plans for footprints and/or handprints.

We made plans to keep a lock of our baby’s hair.

We made plans for other mementos.

I did not make plans for mementos.

My wife did all the planning for mementos

I don’t remember.

Other

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* 8. How do you feel about any medical plans that were made, prior to admission, for delivery?

I am glad we made medical decisions prior to our baby's birth.

I regret making medical decisions prior to the baby's birth.

I am glad we did not make medical decisions for after our baby's birth.

I am glad we made comfort decisions for our baby.

I regret not making comfort measure decisions for our baby.

I regret exploring medical decisions on comfort measures for the baby.

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* 9. Are there any decision and plans you regret making? (Please check any that apply)

I regret holding the baby.

I regret dressing the baby.

I regret bathing the baby.

I regret having pictures taken of the baby.

I regret plans for religious rituals (examples: christening or baptism).

I regret planning which family members to be present during or shortly after birth.

I regret getting footprints and or handprints.

I regret plans for other mementos

Other

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* 10. What type of information did your doctor share with you? (Please check any that apply)

I was informed about delivery benefits and dangers (pros and cons) and allowed to make choices.

I was told she needed a C-section

My wife/partner was told her breast milk may come in after birth and how it could be handled

I wish I was given more information.

I wish I was given less information

I don’t remember

Other

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