WM Community Wellness Survey

Question Title

* 1. Do you take advantage of any of the IWMF’s free virtual wellness classes or webinars offered on the zoom platform, with follow up recordings on YouTube?

Yes

No, but I would like to participate

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* 2. If you answered No to the above, why not?

There are no classes or webinars I’m interested in

The times don’t generally work for my schedule and I’d rather experience the live sessions

I don’t like using Zoom.

I didn’t know about them. Please fill me in and put me on the wellness mailing list.

Other (please specify and include your name and email if you want to be added to mailing list)

Question Title

* 3. If you currently participate in the IWMF’s virtual wellness classes, which classes do you attend (Either live or with recording.) Check all that apply.

Chair Yoga

Cardio Flow

Sound Meditation

Yoga Nidra

Strength Training

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* 4. If you attend the live Zoom classes, do you value the group support chat at the end?

Yes

Sometimes

Please share with us WHY you value the chat

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* 5. How often do you attend ongoing classes (Either live or watching the recordings)?

Regularly

Occasionally

Rarely

N/A: I am getting to know what offerings work for me.

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* 6. **On a scale of 1 to 5, how would you rate the quality of the content of classes?**

1-Poor

2-Fair

3-Good

4-Very Good

5-Excellent

1-Poor

2-Fair

3-Good

4-Very Good

5-Excellent

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* 7. **On a scale of 1 to 5, how would you rate the production quality of the classes? (Audio / Visual / Background Etc)**

1-Poor

2-Fair

3-Good

4-Very Good

5-Excellent

1-Poor

2-Fair

3-Good

4-Very Good

5-Excellent

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* 8. What can we do to improve the classes that are currently offered?
Feel free to share your thoughts.

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* 9. What are some of the benefits you have experienced from attending the wellness classes? Check all that apply and add your own.

Feeling of connection and community

Better breathing

Better posture

More acceptance for my health issues

Range of motion has improved

I feel stronger

I feel more flexible

My balance has improved

Increased mindfulness in my daily living

I feel more relaxed

I get better sleep

Classes help me manage my symptoms better

I learn about living with Waldenstrom's

Spiritually enriching

Other (please specify)

Question Title

* 10. What other repeating wellness classes for WM might you be interested in? Please check all that you’re interested in.

Mindfulness Meditation

Breath-Work (Pranayama, Breath Exercises)

Chair Yoga - with no standing poses

Yoga for Stronger Bones

Gentle Hatha Yoga – a mat class with some transitions to the floor

Restorative Yoga - reclining practice with props for support

Dance Fitness

Pilates

T’ai Chi or Qi Gong - we are working on getting Rami to come once / month in 2024!

Strength Training - we are integrating Sharon's classes into the program

Other (please specify)

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* 11. If you've participated in the IWMF’s virtual Educate and Empower monthly webinars, which did you attend? (Either live or watching recording.) Check all that apply.

T'ai Chi and Qi Gong with Ramel Rones

Finding Fitness with Sharon Piotrowski

Question Title

* 12. On a scale of 1 to 5, how would you rate the quality of the webinars?

1-Poor

2-Fair

3-Good

4-Very Good

5-Excellent

1-Poor

2-Fair

3-Good

4-Very Good

5-Excellent

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* 13. As we continue to develop our Empower and Educate Monthly Webinar Series, which is a wellness lecture series with experiential components drawing from well-researched integrative therapies, which of the following are you interested in attending:

Any integrative therapy that would help Strengthen Bones

Any integrative therapy that would help Manage Pain

Any integrative therapy that would help Peripheral Neuropathy

Any integrative therapy that would help Manage Fatigue

Any integrative therapy that would help Manage Anxiety

Any integrative therapy that would help Manage Depression

Any integrative therapy that would help Manage Stress

Massage Therapy - Self Massage / Lymphatic Massage

Acupuncture / Acupressure

Reiki

Music Therapy

Hypnosis

Mindfulness Based Stress Reduction

Nutrition and Healthy Eating

Death and Dying - Advance Care Planning, Etc.

What else might you be interested in?

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* 14. Would you be interested in a workshop/webinar to share YOUR knowledge and expertise - "WaldenShare"? Topics could include sharing a meditation, a cooking demo, journaling, things that have helped you live well with WM - all shared by those with WM.

Yes

Not sure

Yes, and I have an idea I can present (include your name)

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* 15. Will you be attending the May 2024 Ed Forum in Seattle?

Yes, I'll be there in person

Yes, I'll be there virtually

Maybe

Other (please specify)

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* 16. Which of these wellness offerings at the Ed Forum would you like to attend? (Check all that apply.)

Morning Centering Meditation

Sound Meditation

WM Community Yoga Practice

I might also like:

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* 17. How did you find out about our virtual wellness classes and webinars on Zoom?

IWMF Waldenstrom’s Weekly newsletter

The IWMF Torch (quarterly newsletter)

Private WM Facebook Group

Another WM Community Member

An email or phone exchange with IWMF staff

Social Media - IWMF's Linkedin, Instagram, Facebook or X

IWMF Connect

Other (please specify)

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* 18. Are you active on social media platforms like Facebook, Instagram, Twitter and YouTube?

Yes

Sometimes

Not Really

Never

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* 19. What describes you best? Check all that apply

I prefer to attend live virtual classes.

I prefer to watch recordings of classes on my own time.

I prefer a mixture of attending live classes and watching the recordings.

I'd be interested in an in-person option if a WM Wellness class was available near my geographic location.

Please tell us where you are located if interested in an in-person wellness offering

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* 20. How do you receive your wellness content as it relates to WM? Check all that apply.

Directly from my doctors

From IWMF sources

From other organizations

Research I do for myself

From others living with WM

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* 21. We are contemplating creating one Wellness mailing list. What this means is that you would receive Zoom invites and recordings for all our ongoing classes and webinars. Please weigh in on how you'd like to receive communication.

I am open to receiving all the IWMF wellness content (2-4 emails / week for now)

I am only open to receiving emails about the particular classes and webinars I'm interested in. (Number of emails depends on how many classes you're interested in.)

Other (please specify)

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* 22. Have you ever donated to the IWMF?

Yes

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* 23. If you've donated, have you ever earmarked some or of all your donation to the Wellness Program?

Yes

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* 24. Do you have any other thoughts you'd like to share with us?

Question Title

* 25. This survey is anonymous. If you wish to leave us your name, please enter it below.

Name

Country

Email Address

WM Community Wellness Survey - November 2023

We strive to help you live well with WM!

Question Title

* 1. Do you take advantage of any of the IWMF’s free virtual wellness classes or webinars offered on the zoom platform, with follow up recordings on YouTube?

Question Title

* 2. If you answered No to the above, why not?

Question Title

* 3. If you currently participate in the IWMF’s virtual wellness classes, which classes do you attend (Either live or with recording.) Check all that apply.

Question Title

* 4. If you attend the live Zoom classes, do you value the group support chat at the end?

Question Title

* 5. How often do you attend ongoing classes (Either live or watching the recordings)?

Question Title

* 6. On a scale of 1 to 5, how would you rate the quality of the content of classes?

Question Title

* 7. On a scale of 1 to 5, how would you rate the production quality of the classes? (Audio / Visual / Background Etc)

Question Title

* 8. What can we do to improve the classes that are currently offered? Feel free to share your thoughts.

Question Title

* 9. What are some of the benefits you have experienced from attending the wellness classes? Check all that apply and add your own.

Question Title

* 10. What other repeating wellness classes for WM might you be interested in? Please check all that you’re interested in.

Question Title

* 11. If you've participated in the IWMF’s virtual Educate and Empower monthly webinars, which did you attend? (Either live or watching recording.) Check all that apply.

Question Title

* 12. On a scale of 1 to 5, how would you rate the quality of the webinars?

Question Title

* 13. As we continue to develop our Empower and Educate Monthly Webinar Series, which is a wellness lecture series with experiential components drawing from well-researched integrative therapies, which of the following are you interested in attending:

Question Title

* 14. Would you be interested in a workshop/webinar to share YOUR knowledge and expertise - "WaldenShare"? Topics could include sharing a meditation, a cooking demo, journaling, things that have helped you live well with WM - all shared by those with WM.

Question Title

* 15. Will you be attending the May 2024 Ed Forum in Seattle?

Question Title

* 16. Which of these wellness offerings at the Ed Forum would you like to attend? (Check all that apply.)

Question Title

* 17. How did you find out about our virtual wellness classes and webinars on Zoom?

Question Title

* 18. Are you active on social media platforms like Facebook, Instagram, Twitter and YouTube?

Question Title

* 19. What describes you best? Check all that apply

Question Title

* 20. How do you receive your wellness content as it relates to WM? Check all that apply.

Question Title

* 21. We are contemplating creating one Wellness mailing list. What this means is that you would receive Zoom invites and recordings for all our ongoing classes and webinars. Please weigh in on how you'd like to receive communication.

Question Title

* 22. Have you ever donated to the IWMF?

Question Title

* 23. If you've donated, have you ever earmarked some or of all your donation to the Wellness Program?

Question Title

* 24. Do you have any other thoughts you'd like to share with us?

Question Title

* 25. This survey is anonymous. If you wish to leave us your name, please enter it below.

* 6. **On a scale of 1 to 5, how would you rate the quality of the content of classes?**

* 7. **On a scale of 1 to 5, how would you rate the production quality of the classes? (Audio / Visual / Background Etc)**

* 8. What can we do to improve the classes that are currently offered?
Feel free to share your thoughts.