Pediatric Pain Warriors

U.S. Pain will be launching its Pediatric Pain Warriors Program in the coming weeks. We are looking for feedback from kids and families to understand how to best serve them.

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* 1. Which best describes you?

I am under 18 and living with pain

I am a parent or caregiver of someone under 18 who lives with pain

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* 2. In your family, how old is the child (or children) who lives with pain?

0-6 years old

7-12 years old

13-18 years old

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* 3. What information would help you the most on your family’s pain journey?

Webinars on different topics

Brochures and resources to take to school and drs office

Online support groups for teenagers

Online support group for parents

Retreats/get togethers for families

Being partnered with another similar family to help support each other

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* 4. What is the biggest resource you are currently missing?

How to properly advocate within the school system

How to properly advocate with doctors

Complimentary therapy information

Pediatric pain management information

Understanding your rights as a parent and patient

Help dealing with financial challenges

How to tell/share your story

Emotional support for children and/or families

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* 5. What types of webinars would you like to see or participate in?

Advocating- drs, family members, schools and legislators

Complimentary therapies

Pediatric pain management options

Meditation

Self-care for parents

Self-care for children

Managing the family unit with a chronic pain child

Coping with self-confidence issues, feeling different, and/or bullying

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* 6. What is your greatest need?

Emotional support

Community advocacy

In person meet ups

Information on treating pediatric pain

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* 7. Are you currently advocating to your state and local representatives on health-related issues?

Yes

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* 8. What state are you located in?

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* 9. Does the person under 18 and living with pain have any siblings?

Yes

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* 10. If you have any other comments or suggestions for U.S. Pain's Pediatric Pain Warrior Program, please enter them here.

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* 11. If you are interested in staying connected on upcoming programs and services offered by the Pediatric Pain Warrior Program, please leave your email here.