2023 ISN Community Film Event

Cast your vote now!

The ISN congratulates all the filmmakers for their submissions, and thanks them for making the ISN Community Film Event such an engaging experience.

The Film Event Jury selected 7 finalists. Who wins? You choose!
Vote for your favorite by Saturday April 1, 2023 at 12 p.m. (noon) ICT!

The most voted film on March 9 will receive a special recognition, the “WKD 2023 Best Film”. Voting will continue throughout March until WCN’23 to elect the “2023 ISN Film Community Best Film”.

The nominees are:

OVERCOMING THE REMOTENESS WITH LOVE FOR A KIDNEY TRANSPLANTATION
Submitted by:
J. Restrepo (Fundacion Valle Del Lili, Department of Pediatrics, Cali, Colombia), J.M. Forero Delgadillo (Fundacion Valle Del Lili, Department of Pediatrics, Cali, Colombia), V.A. Ochoa Jiménez (Fundacion Valle Del Lili, Department of Pediatrics, Cali, Colombia), M.D.P. Duque Guevara (Fundacion Valle Del Lili, Department of Pediatrics, Cali, Colombia), A. Montenegro (Fundacion Valle Del Lili, Department of Communications, Cali, Colombia), M.I. Sánchez Vélez (Fundacion Valle Del Lili, Department of Communications, Cali, Colombia)

Summary
This is the story of a boy from a remote village in the Colombian pacific region. This boy had recurrent urinary tract infections in his first age of life and vesicoureteral reflux was detected leading to renal failure and requiring peritoneal dialysis for a year with a very good adherence and with no peritonitis episodes. The commitment of this boy and his mother is remarkable in overcoming the remoteness with love.

HIDDEN-CKD PATIENTS PERSPECTIVES
Submitted by:
R. Agyekum (King's College NHS Foundation Trust, Renal, Petts Wood, United Kingdom)

Summary
Chronic Kidney Disease (CKD) is estimated to affect up to 10-12% of the UK population. In the UK, people of ethnic minority heritage and socio-economically deprived communities are up to five times more likely to have kidney disease than Caucasians, and are approximately ten years younger when they develop kidney disease. Whilst the primary traditional risk factors for progression include modifiable factors such as diabetes and hypertension, with ethnicity as the main dominant non-modifiable factor, people of African and Afro-Caribbean Ancestry are at increased risk of developing (CKD) due to apolipoprotein L1 (APOL1) risk variants which is more prevalent in individuals of West African heritage.

Although, there are numerous CKD related programme aimed at raising awareness, within my community (South East London, UK) people of ethnic minority heritage and socio-economically deprived communities still present with late stages of kidney disease. A focus group discussion in August 2019 to review CKD campaign material highlighted the need for culturally appropriate materials that the target group can align with.

In March 2020, an application for funding was submitted to the National Institute of Health Research, which was successfully granted in 2021. Patients already diagnosed with CKD were invited to share their journey as well as key messages in order to raise awareness and encourage people of ethnic minority heritage and socio-economically deprived communities to actively engage with health screening events. The film recorded in August 2021 contain key messages from King's College NHS Foundation Trust "Kidney Heroes" to their community members as well as to healthcare professionals. The overall aim is to use the film at community screening events to raise awareness, promote uptake of general annual screening including kidney health.

ENDURING HOPE THE STORY OF DR AKOS PETHO
Submitted by:
N. Frakes (Fresenius Medical Care, Semmelweis University Dialysis Station, Budapest, Hungary); M. Frakes ( Budapest, Hungary)

Summary
As a child, he learns about a disease called ADPKD that he inherited from his father. Through the years he accepts his condition and even goes beyond to help others as a Doctor of Nephrology and a Professor. Despite events, Dr. Petho continued to live a full life and encouraged others to do the same. After COVID nearly ended his life in 2020, he found a renewed empathy for his patients as he himself must survive with the help of dialysis treatment.

RESEARCH PROVIDES HOPE FOR TRANSPLANT PATIENTS
Submitted by:
R. Sapir-Pichhadze (McGill University, Medicine, Montréal, Canada)

Summary
In our film, Research Provides HOPE for Transplant Patients, that was produced in 2022 to 2023, patient partners of the Genome Canada Transplant Consortium, Teresa Atkinson and Mary Beaucage, share their transplant story from wait listing, through transplantation, rejection, graft failure, and re-transplantation. Their stories illustrates the struggles experienced by patients pre-transplant when seeking access to compatible donors, as well as challenges encountered post-transplant when experiencing rejection and/or adverse effects of therapies. The movie highlights patients' hope that improved donor and recipient compatibility, made possible by precision medicine tools, will optimize experiences and outcomes following kidney transplantation.

UNCONDITIONAL LOVE
Submitted by:
K.P. Pyar (Khin Phyu Pyar/ISN/Myanmar, Department of medicine and Department of Nephrology - Defence Services Medical Academy- Yangon-Myanmar, Yangon, Myanmar)

Summary
Mother's love is unconditional. Daughter had Haemodialysis for two years. The blood group of her three siblings is not match with her. The husband too. The family is uneducated and poor. They lived in rubber firm. Mother has been supporting for her daughter till now; child birth, education, nursery, money and social support. Her blood group is the same as the daughter. She decided to donate kidney without request from her daughter. She has been caring the daughter even after transplant. And she also support financial aspect. She has been doing rubber tapping at midnight till now. Mother is a gift from the God for the daughter. Ultimate love of mother!

MIRACLES HAPPEN EVERYDAY
Submitted by:
T. Kanjanabuch (Faculty of Medicine- Chulalongkorn University and King Chulalongkorn Memorial Hospital, Center of Excellence in Kidney Metabolic Disorders, Pathum Wan, Thailand), S. Purisinsith (Health Department- Bangkok Metropolitan Administration- Bangkok- Thailand, Health Department, Bangkok, Thailand), S. Tungsanga (Division of Nephrology- Department of Medicine- Faculty of Medicine- Chulalongkorn University- Bangkok - Thailand, Department of Medicine- Faculty of Medicine, Bangkok, Thailand), T. Saejew (Faculty of Medicine- Chulalongkorn University, Center of Excellence in Kidney Metabolic Disorders, Bangkok, Thailand)

Summary
Do you believe in miracles? We believe that miracle do exist and can happen everyday. A story of a medical student who becomes a kidney failure patient and his future towards being a nephrologist. Please follow his life story and give him a big support in "Miracles Happen Everyday."

HOPE SUSTAINS LIFE THROUGH THE LENS OF A CKD WOMAN
Submitted by:
S. Shanmugham, G. Krishnan, C. Thirumavalavan, R. Sethuraman (KG Hospital, Nephrology, Coimbatore, India)

Summary
This film was shotted in 2023. In developing countries like India, the incidence of CKD in women is equal to that of men, but male patients outnumber female patients in dialysis and transplants. Many of the donors were women and most recipients were men, Many social and economic factors may contribute to this disparity. This is a story of a 60-year-old end-stage kidney disease woman, who works as a housekeeping staff in the nephrology department at her hospital for more than 10 years. She did not expect any support from her family nor did they give, and she lives alone. She was diagnosed to have kidney disease three years back, and she explains how she is coping with her life, how she earns for her treatment and how she confidently survives with kidney disease. When I was just discussing this event ";WCN Community film" she herself came forward to portray her story, as she has seen a significant number of treatment dropouts in female patients and she thinks it could be because of social and family situations. She wants this scenario to change. She wants to create awareness among the public and to inspire the women living with kidney disease, through her life story, not to withdraw therapy and to take proper treatment for a healthy living. She ends up with a message to all those fighting against the disease with hope "Life is lived once, and let us live it in a good and healthy way"