FSHD Early Onset Parents Needs Survey

Thank you for participating in our survey! It should take about 10 minutes to complete. Your responses will be kept confidential and used to better understand the needs of our Early-onset Parents FSHD community and better serve you in the future.

Question Title

* 1. What is your relationship to FSHD? Select all that apply.

I have FSHD

Parent of a child (currently under 18) with FSHD

Parent of a young adult with FSHD (over 18), who was diagnosed as a child

I have one or more family members with FSHD

I have one or more friends with FSHD

Other (please specify)

10% of survey complete.