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1. About the survey

BAPEN would like to invite UK dietitians, home enteral feeding or nutrition support team members from any NHS Trust, health or social care setting to complete this survey about the profile of the UK adult enterally fed population.
Investigation of this client group, with specific regard to their diagnosis and demographics will help us describe the current profile of adults requiring home enteral feeding across the UK. We anticipate repeating this survey to enable BAPEN to monitor and report on changes and trends. This will provide useful data for service planning and benchmarking.
Your data will be reported anonymously within UK regions. Results will be published within BAPEN reports and may also be included in journal articles, used in communications, social media, presentations or similar. It will not be possible to withdraw responses once you have submitted your survey. Data will be stored by BAPEN for a maximum of 10 years, after which time the database will be deleted.
From our pilot work this survey should take less than 20 minutes to complete.
By way of acknowledging the time taken to complete the survey and share your anonymous data we would like to offer you the chance to receive a gift voucher. Details are available on completion of the survey.
About BAPEN: The British Association for Parenteral and Enteral Nutrition (BAPEN) is a Charitable Incorporated Organisation (CIO) which brings together leading multi-disciplinary professional and patient groups and networks from across the UK to help promote the best possible outcomes in nutritional care.

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* 1. Please tell us about your role

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* 2. Are you part of a multidisciplinary team (MDT)

  Home Enteral Feeding Team Nutrition Support Team
Yes
No

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* 3. Please tell us the name of the NHS Trust, Health or Social Care Organisation you are providing responses about. This enables us to remove any duplication of survey reponses. The name of your organisation will be removed when describing the findings.

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* 4. Please tell us the geographical region of the NHS Trust, Health or Social Care organisation.

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* 5. If on-going care is at a Regional Centre please provide the postcode

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* 6. Does the NHS Trust, Health or Social Care organisation have access to a Home Enteral Feeding (HEF) service?

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* 7. Does your service support adults requiring HEF?

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* 8. How many Dietitians currently support this adult case load?

  Posts Hours of all Posts
Full Time
Part Time

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* 9. How many Nutrition Nurses currently support this adult case load?

  Posts Hours of all Posts
Full Time
Part Time

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* 10. How many Dietetic assistants or Associate Practitioners currently support this adult case load?

  Posts Hours of all Posts
Full Time
Part Time
Section 2 About your Service Users

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* 11. How many service users do you have in the following age groups?

  0 1-5 6-10 11-20 20+
Number of clients aged 18-65 years old
Number of clients aged 66-79 years old
Number of clients aged 80 years and older
I don't know

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* 12. How many of your adult service users have a neurological condition?

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* 13. It would be really helpful if you could provide more data about specific neurological conditions including functional neurological disease. Please see below and provide any data you have.

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* 14. How many of your adult service users have cancer?

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* 15. It would be really helpful if you could provide more data about specific cancer types. Please see below and provide any data you might have.

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* 16. How many of your adult service users have conditions affecting the gastrointestinal tract?

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* 17. It would be really helpful if you could provide more data about specific conditions. Please see below and provide any data you might have.

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* 18. Please tell us about the number if service users with the following primary
diagnosis below. Please provide as much data as you have available.

Section 3 About Enteral Feeding Tubes

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* 19. Please tell us about the number of adult service users using different types of
enteral feeding tubes.

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* 20. Approximately how many A&E visits or hospital admissions have resulted from tube complications during the past 4 weeks?

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* 21. Approximately how many of these visits or admissions have occurred out of core office hours?

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* 22. Please feel free to provide any further comment about your HEFT service or clients. We would also be interested in hearing about future surverys you would like BAPEN to undertake in this area.

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* 23. Thank you for taking the time to complete this survey. If you would like the chance to receive a £25 Gift Voucher please provide your name and work email address. A winner will be picked at random and contacted with the voucher. Names and emails will only be used for this purpose and deleted following randomisation.

We look forward to sharing the findings of this survey in a report on the BAPEN website later this year.

If you wish to discuss this survey or have any concerns please click on the link for details about how to contact BAPEN https://www.bapen.org.uk/contact-us/

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