In 2014, the Harnett Grant was founded by Mr. Michael Harnett, as an enduring memorial to his nephew, Brendan Michael Harnett. Brendan was diagnosed with infantile spasms and passed away before his first birthday. The Child Neurology Foundation gratefully partners with the Harnett family again this year to honor Brendan through the offering of one $1,000 grant to assist families living with infantile spasms.
In addition, CNF proudly introduces the 2019 RISE Family Grants. This year, with support from our Infantile Spasms Action Network (ISAN) partners, CNF is offering ten $1,000 grants to families living with infantile spasms.
The Harnett and RISE Family Grants are intended to help families by offsetting expenses that may only be partially covered by insurance or not at all. In the past, families have utilized these grants for items such: durable medical equipment, assistive technology, therapy services, respite care, etc.
Eleven families will be chosen at random. Applications due November 8, 2019 by 8am CT.
Selected families will be notified in advance of Infantile Spasms Awareness Week, December 1-7, 2019.