Adult Guide Survey

Question Title

* Connection to CF

I am a person with CF

I am a parent of a person with CF

I am a grandparent of a person with CF

I am a spouse/partner of person with CF

I am a sibling of a person with CF

Other (please specify)

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* How did you hear about the Adult Guide?

CFF.org

Social Medai (Facebook, Twitter, etc.)

From a friend

Community Voice email

Other (please specify)

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* Which portions of the Adult Guide are of interest to you?

	Have read	Would like to read	May reference someday	Will never use
Basics of Lung Care	Basics of Lung Care Have read	Basics of Lung Care Would like to read	Basics of Lung Care May reference someday	Basics of Lung Care Will never use	Basics of Lung Care
Sinusitis and CF	Sinusitis and CF Have read	Sinusitis and CF Would like to read	Sinusitis and CF May reference someday	Sinusitis and CF Will never use	Sinusitis and CF
NTM	NTM Have read	NTM Would like to read	NTM May reference someday	NTM Will never use	NTM
Lung Transplant	Lung Transplant Have read	Lung Transplant Would like to read	Lung Transplant May reference someday	Lung Transplant Will never use	Lung Transplant
Basics of Digestive Tract	Basics of Digestive Tract Have read	Basics of Digestive Tract Would like to read	Basics of Digestive Tract May reference someday	Basics of Digestive Tract Will never use	Basics of Digestive Tract
DIOS	DIOS Have read	DIOS Would like to read	DIOS May reference someday	DIOS Will never use	DIOS
Gastroesophageal	Gastroesophageal Have read	Gastroesophageal Would like to read	Gastroesophageal May reference someday	Gastroesophageal Will never use	Gastroesophageal
Improving Nutrition with Tube Feedings	Improving Nutrition with Tube Feedings Have read	Improving Nutrition with Tube Feedings Would like to read	Improving Nutrition with Tube Feedings May reference someday	Improving Nutrition with Tube Feedings Will never use	Improving Nutrition with Tube Feedings
CF-Related Diabetes	CF-Related Diabetes Have read	CF-Related Diabetes Would like to read	CF-Related Diabetes May reference someday	CF-Related Diabetes Will never use	CF-Related Diabetes
Basics of Infection Control	Basics of Infection Control Have read	Basics of Infection Control Would like to read	Basics of Infection Control May reference someday	Basics of Infection Control Will never use	Basics of Infection Control
Vascular Access Devices	Vascular Access Devices Have read	Vascular Access Devices Would like to read	Vascular Access Devices May reference someday	Vascular Access Devices Will never use	Vascular Access Devices
Anxiety and Depression	Anxiety and Depression Have read	Anxiety and Depression Would like to read	Anxiety and Depression May reference someday	Anxiety and Depression Will never use	Anxiety and Depression
Basics of CF and Male Infertility	Basics of CF and Male Infertility Have read	Basics of CF and Male Infertility Would like to read	Basics of CF and Male Infertility May reference someday	Basics of CF and Male Infertility Will never use	Basics of CF and Male Infertility
Birth Control for Women with CF	Birth Control for Women with CF Have read	Birth Control for Women with CF Would like to read	Birth Control for Women with CF May reference someday	Birth Control for Women with CF Will never use	Birth Control for Women with CF
Pregnancy in CF	Pregnancy in CF Have read	Pregnancy in CF Would like to read	Pregnancy in CF May reference someday	Pregnancy in CF Will never use	Pregnancy in CF
Menopause in CF	Menopause in CF Have read	Menopause in CF Would like to read	Menopause in CF May reference someday	Menopause in CF Will never use	Menopause in CF
Day-to-Day Time Management	Day-to-Day Time Management Have read	Day-to-Day Time Management Would like to read	Day-to-Day Time Management May reference someday	Day-to-Day Time Management Will never use	Day-to-Day Time Management
Eating on the Go	Eating on the Go Have read	Eating on the Go Would like to read	Eating on the Go May reference someday	Eating on the Go Will never use	Eating on the Go
Exercise with CF	Exercise with CF Have read	Exercise with CF Would like to read	Exercise with CF May reference someday	Exercise with CF Will never use	Exercise with CF
Having a Fabulous Social Life	Having a Fabulous Social Life Have read	Having a Fabulous Social Life Would like to read	Having a Fabulous Social Life May reference someday	Having a Fabulous Social Life Will never use	Having a Fabulous Social Life
Traveling with CF	Traveling with CF Have read	Traveling with CF Would like to read	Traveling with CF May reference someday	Traveling with CF Will never use	Traveling with CF
Parenting as an Adult with CF	Parenting as an Adult with CF Have read	Parenting as an Adult with CF Would like to read	Parenting as an Adult with CF May reference someday	Parenting as an Adult with CF Will never use	Parenting as an Adult with CF
Finding Community Support	Finding Community Support Have read	Finding Community Support Would like to read	Finding Community Support May reference someday	Finding Community Support Will never use	Finding Community Support
Managing Home Care	Managing Home Care Have read	Managing Home Care Would like to read	Managing Home Care May reference someday	Managing Home Care Will never use	Managing Home Care
Changing Care Centers	Changing Care Centers Have read	Changing Care Centers Would like to read	Changing Care Centers May reference someday	Changing Care Centers Will never use	Changing Care Centers
Participating in CF Clinical Trials	Participating in CF Clinical Trials Have read	Participating in CF Clinical Trials Would like to read	Participating in CF Clinical Trials May reference someday	Participating in CF Clinical Trials Will never use	Participating in CF Clinical Trials

Question Title

* Is there anything that is missing from the Adult Guide?

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* Would you talk to or share with your care team or health care provider about what you read in the Adult Guide?

Yes

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* How likely is it that you would recommend the Adult Guide to a friend or colleague?

Not at all likely

Extremely likely

Adult Guide Survey

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* First Name

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* Last Name

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* Primary Email Address

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* Connection to CF

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* How did you hear about the Adult Guide?

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* Which portions of the Adult Guide are of interest to you?

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* Is there anything that is missing from the Adult Guide?

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* Would you talk to or share with your care team or health care provider about what you read in the Adult Guide?

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* How likely is it that you would recommend the Adult Guide to a friend or colleague?

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* Are there any topics specific to living with CF as an adult, that you would like to learn more about?

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* Do you have any other feedback about the Adult Guide?