Introduction

Thank you for participating in our survey. Your feedback is important.
We are recruiting individuals and care partners to participate in a research study being conducted by RTI Health Solutions (RTI‑HS) on behalf of AD PACE and UsAgainstAlzheimer’s regarding the lived experience of Alzheimer’s disease. This research will include individuals at risk for developing Alzheimer’s disease−related dementia, those currently living with Alzheimer’s disease−related dementia, and the care partners of these individuals. RTI‑HS is currently working with patient and care partner support groups and patient and care partner representatives, educators, and pharmaceutical companies that are developing treatments for Alzheimer’s disease. As part of this work, RTI‑HS is conducting an online survey with approximately 600 people interested in Alzheimer’s disease research, as well as individuals who are at-risk or have Alzheimer’s disease and care partners of individuals with Alzheimer’s disease.

The survey will focus on any experiences with memory problems or difficulty thinking. These questions may touch on:

§ Social life/activities

§ Communication

§ Thought processing

§ Daily activities

§ Feelings about Alzheimer’s disease

§ What matters most to you
People interested in participating in this study will be invited to participate in the survey via email invitation. You may be eligible for the study. If you agree to participate, you may be asked to have a physician complete a form to confirm the appropriate category for your study participation if this information is not known/available to you.

If you are a care partner for an individual, you will be asked your opinion about these topics considering your experiences providing care.

The survey will take about 30 minutes to complete.

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