National UK Survey about Adrenal Tumour Pathways
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1.
Your position:
(Required.)
Clinical Service Lead
Consultant Endocrinologist
Clinical trainee in Endocrinology
Other (please provide details)
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2.
Type of practice:
(Required.)
Tertiary hospital
Secondary care hospital
District General hospital
Private
Other (please provide details)
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3.
Region of practice
(Required.)
England
Wales
Scotland
Northern Ireland
Other (please provide details)
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4.
Is your Endocrine Departments considered a tertiary referral centre for adrenal diseases including adrenal tumours?
(Required.)
Yes for adrenal disease in general and for adrenal tumours
No
For adrenal diseases in general but not for adrenal tumours
Other (please provide details)
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5.
How many referrals for adrenal incidentalomas does your centre receive per year (approximately)?
(Required.)
Less than 15
15-50
50-100
100-200
Over 200
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6.
In your centre, are there local SOP / dedicated diagnostic pathways in place for diagnostic work up and management of patients with adrenal incidentalomas?
(Required.)
Yes
No
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7.
If yes to question 6, to what extent your local SOP/diagnostic pathways for adrenal incidentaloma adhere to the current ESE-ENSAT European Guidelines 2023:
(Required.)
Local pathway fully adhere to European Guidelines
Local pathway partially adhere to European Guidelines (not for imaging work up and/or surveillance)
Local pathway partially adhere to European Guidelines (not for hormonal/biochemical work up and/or monitoring)
Local pathway do NOT adhere to European Guidelines
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8.
In your centre, how many patients referred for adrenal incidentalomas are diagnosed with (primary or secondary) adrenal malignancies (approximately)?
(Required.)
Less than 2%
2-5%
5-10%
Over 10%
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9.
In your centre, on average, how long does it take to obtain a final diagnosis and a management plan (including surgery or discharge) for patient referred for adrenal incidentalomas?
(Required.)
Less than 3 months
3-6 months
6-12 months
Over 12 months
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10.
In your centre, is there an established regular MDT meeting for discussion of cases with complex adrenal lesions (including at least endocrinologists, surgeon, radiologist, oncologist)?
(Required.)
Yes - specific for adrenal - weekly or bi-weekly
Yes - specific for adrenal - monthly
No - we refer to another centre
Yes but within another MDT (please specify)
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11.
In your centre, do you use urinary/serum steroid profiling as a diagnostic test for patients with adrenal incidentalomas?
(Required.)
Yes - on a regular basis
Yes - in specific selected cases
No - only for research purposes
No we do not request steroid profile
No - we refer to another centre (please specify which)
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12.
Do you agree to be contacted in the future for potential research studies about adrenal tumours?
(Required.)
Yes
No
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13.
Eventual additional comments:
(Required.)
