Thank you for your interest in the Lived Experience Panel (LEP). You may save your answers, exit the form and return to complete and submit your responses at any time.
The Lived Experience Panel will consist of nine individuals living with or caring for people living with dementia. Panel members will be asked to participate in six virtual meetings (3 in the spring/summer, 3 in fall/winter) with potential for some members to serve longer terms.
The role of the Lived Experience Panel is to provide ongoing feedback to the work of the National Institute on Aging (NIA) IMPACT Collaboratory including: ● What are important topics for research? ● How can studies be designed so that participation is easier for persons living with dementia and their family members and care partners? ● How can people with lived experience of dementia be involved in design of research and implementation of research studies?
Nominees for the Lived Experience Panel should fit one of the following categories: ○ Individuals with a documented diagnosis of early stage Alzheimer’s, Mild Cognitive Impairment (MCI) or other early stage dementia ○ Care partners representing his or her own experience caring for an individual living with dementia ○ Care partners/family members who can represent the perspective of one or more individuals living in the middle or late stage
The composition and management of the LEP reflects a coordinated effort between the National Institute on Aging's (NIA) IMPACT Collaboratory and the Alzheimer’s Association.
To learn more about the IMPACT Collaboratory, please visit www.impactcollaboratory.org. To learn more about the Alzheimer's Association, please visit www.alz.org.
