Engages in fun activities with my child and our family
Engages in fun activities with my child and our family 1 Strongly agree
Engages in fun activities with my child and our family 2 Agree
Engages in fun activities with my child and our family 3 Neither agree or disagree
Engages in fun activities with my child and our family 4 Disagree
Engages in fun activities with my child and our family 5 Strongly disagree
The opportunity to sleep and recharge batteries
The opportunity to sleep and recharge batteries 1 Strongly agree
The opportunity to sleep and recharge batteries 2 Agree
The opportunity to sleep and recharge batteries 3 Neither agree or disagree
The opportunity to sleep and recharge batteries 4 Disagree
The opportunity to sleep and recharge batteries 5 Strongly disagree
Improves my ability to cope with the challenges of caring for my child
Improves my ability to cope with the challenges of caring for my child 1 Strongly agree
Improves my ability to cope with the challenges of caring for my child 2 Agree
Improves my ability to cope with the challenges of caring for my child 3 Neither agree or disagree
Improves my ability to cope with the challenges of caring for my child 4 Disagree
Improves my ability to cope with the challenges of caring for my child 5 Strongly disagree
Improves family relationships
Improves family relationships 1 Strongly agree
Improves family relationships 2 Agree
Improves family relationships 3 Neither agree or disagree
Improves family relationships 4 Disagree
Improves family relationships 5 Strongly disagree
Developed friendships and support networks, opportunity to talk to families that understand
Developed friendships and support networks, opportunity to talk to families that understand 1 Strongly agree
Developed friendships and support networks, opportunity to talk to families that understand 2 Agree
Developed friendships and support networks, opportunity to talk to families that understand 3 Neither agree or disagree
Developed friendships and support networks, opportunity to talk to families that understand 4 Disagree
Developed friendships and support networks, opportunity to talk to families that understand 5 Strongly disagree
Managing the symptoms of my child's conditions
Managing the symptoms of my child's conditions 1 Strongly agree
Managing the symptoms of my child's conditions 2 Agree
Managing the symptoms of my child's conditions 3 Neither agree or disagree
Managing the symptoms of my child's conditions 4 Disagree
Managing the symptoms of my child's conditions 5 Strongly disagree
Increased my ability to cope
Increased my ability to cope 1 Strongly agree
Increased my ability to cope 2 Agree
Increased my ability to cope 3 Neither agree or disagree
Increased my ability to cope 4 Disagree
Increased my ability to cope 5 Strongly disagree
I feel better informed about any services that could help support my child and family
I feel better informed about any services that could help support my child and family 1 Strongly agree
I feel better informed about any services that could help support my child and family 2 Agree
I feel better informed about any services that could help support my child and family 3 Neither agree or disagree
I feel better informed about any services that could help support my child and family 4 Disagree
I feel better informed about any services that could help support my child and family 5 Strongly disagree
Improved our psychological wellbeing/ reduced levels of stress/ anxiety
Improved our psychological wellbeing/ reduced levels of stress/ anxiety 1 Strongly agree
Improved our psychological wellbeing/ reduced levels of stress/ anxiety 2 Agree
Improved our psychological wellbeing/ reduced levels of stress/ anxiety 3 Neither agree or disagree
Improved our psychological wellbeing/ reduced levels of stress/ anxiety 4 Disagree
Improved our psychological wellbeing/ reduced levels of stress/ anxiety 5 Strongly disagree
Opportunity to talk about advanced care planning
Opportunity to talk about advanced care planning 1 Strongly agree
Opportunity to talk about advanced care planning 2 Agree
Opportunity to talk about advanced care planning 3 Neither agree or disagree
Opportunity to talk about advanced care planning 4 Disagree
Opportunity to talk about advanced care planning 5 Strongly disagree
Support in preparing my child to move to adult services post 19
Support in preparing my child to move to adult services post 19 1 Strongly agree
Support in preparing my child to move to adult services post 19 2 Agree
Support in preparing my child to move to adult services post 19 3 Neither agree or disagree
Support in preparing my child to move to adult services post 19 4 Disagree
Support in preparing my child to move to adult services post 19 5 Strongly disagree
