Diagnosis Stories - Medical Outreach Survey

Thank you for sharing your diagnosis story.

The DSCBA Medical Outreach Alliance works to improve the diagnosis experiences for families by improving communication about Down syndrome and resources provided by clinicians.

We'd like to learn more about the diagnosis experiences of new or expectant parents of children with Down syndrome. We also want to learn more about the information and resources offered when you received the news.

Question Title

* 1. Was your child's Down syndrome diagnosis prenatal or postnatal?

Question Title

* 2. What type of testing was performed to determine your diagnosis?
(select as many as applies)

Blood screen (Cell-Free DNA/NIPS/NIPT)

CVS (chorionic villus sampling)

Amniocentesis

Ultrasound

Other (please specify)

None of the above

Question Title

* 3. Were you given information about your testing options?

Yes

If "Yes" please explain

Question Title

* 4. What information or resources were you given after diagnosis?

Question Title

* 5. Were you satisfied with your diagnosis experience?

Yes

Question Title

* 6. What did you find helpful about your diagnosis experience?

Question Title

* 7. What would you change about your diagnosis experience?

Question Title

* 8. Please feel free to share anything else you would like to share about your experience.

Question Title

* 9. We would like to follow up with your medical provider to make sure we are partnered with them to support our families with a member with Down syndrome.

Please share their contact information below.

Name

Company

Address

Address 2

City/Town

State/Province

ZIP/Postal Code

Phone Number

Question Title

* 10. May we contact you to follow up on your answers, if we have further questions?

Yes

Question Title

* 11. Your Contact Information

Name

City/Town

Email Address

Phone Number

Question Title

* 12. What year was your child was born?

Thank you for taking the time to complete our survey.

Congratulations on the new addition to your family!

DSCBA Medical Outreach Alliance

Diagnosis Stories - Medical Outreach Survey

Thank you for sharing your diagnosis story.

Question Title

* 1. Was your child's Down syndrome diagnosis prenatal or postnatal?

Question Title

* 2. What type of testing was performed to determine your diagnosis?(select as many as applies)

Question Title

* 3. Were you given information about your testing options?

Question Title

* 4. What information or resources were you given after diagnosis?

Question Title

* 5. Were you satisfied with your diagnosis experience?

Question Title

* 6. What did you find helpful about your diagnosis experience?

Question Title

* 7. What would you change about your diagnosis experience?

Question Title

* 8. Please feel free to share anything else you would like to share about your experience.

Question Title

* 9. We would like to follow up with your medical provider to make sure we are partnered with them to support our families with a member with Down syndrome. Please share their contact information below.

Question Title

* 10. May we contact you to follow up on your answers, if we have further questions?

Question Title

* 11. Your Contact Information

Question Title

* 12. What year was your child was born?

* 2. What type of testing was performed to determine your diagnosis?
(select as many as applies)

* 9. We would like to follow up with your medical provider to make sure we are partnered with them to support our families with a member with Down syndrome.

Please share their contact information below.