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TANGO2 Research Study 

When a new disease such as TANGO2 is discovered, there is a lot to learn.  Many of the physicians caring for children with TANGO2 have never seen or managed this disease.  The best way to learn about a new disease is to gather as much information as possible.  As parents living with children with TANGO2, you can offer so much insight and help us learn more about the disease.  We hope to use this information to identify similarities and differences among the children, identify treatments that work and don’t work, and discover areas that need further research.  Ultimately our hope is to find a cure but without information, this is a challenge.  We would like to ask if you would be willing to share information about your child with us. By participating in the natural history study, you will spend approximately 1 hour by phone with one of our team members.
1.Are you interested in participating in the TANGO2 natural history study being conducted by Baylor College of Medicine?(Required.)
2.What is your name?(Required.)
3.How many of your children are affected with TANGO2 disease?
4.What is/are the name(s) of your child/children with TANGO2 disease?(Required.)
5.Please provide age(s) of your child/children with TANGO2 disease?(Required.)
6.Is it ok if one of our team members reaches out to talk to you?(Required.)
7.What state and country do you live in?(Required.)
8.What are the best times of the day to contact you?(Required.)
9.Please provide your current phone number and address so that we can set up telephone calls during your preferred time, based on your location(Required.)
10.Please provide your email address(Required.)
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