Would you like to have a seat at the table?

What do you think you would need to know to be an informed, educated patient representative on any healthcare body in Canada?

Patients are increasingly involved in the healthcare system as members of cancer agencies, hospital boards or family councils, on regional health boards and on research panels for decision on research spending.

The Canadian Cancer Survivor Network wants to provide patients with the best possible orientation and information to participate and make decisions about health care.

We invite you to share your thoughts about what information, education or resources would make you a better patient representative; your input is essential in helping CCSN to develop new tools and methods to prepare patients to take their place at the table.

Question Title

* 1. What kind of board or committee would you like to sit on?

Cancer agency committee

Cancer agency board

Hospital board

Hospital patient and family committee

Regional health board

Regional health committee

Research peer review committee

CADTH or pCODR committee

Research ethics board

Provincial health technology assessment committee

CIHR or Health Canada committee or advisory group

Other (please specify)

Question Title

* 2. What kind of information, education or training would you like to receive to prepare you to be a patient representative?

Written material

Audio materials (podcasts, for example)

Webinars

Photos, infographics, images or illustrations

Social media posts on Twitter, Facebook

YouTube videos

In person training

Mentoring

Online or e-education course

Other (please specify)

Question Title

* 3. How often would you like training to be available?

Once a week

Once every two weeks

Monthly

On demand, when I need it

Other (please specify)

Question Title

* 4. Please indicate what kind of education would be helpful to you as a patient representative.

	Yes	No
Healthcare in Canada: who does what?	Healthcare in Canada: who does what? Yes	Healthcare in Canada: who does what? No
Opportunities for patient representatives in Canada	Opportunities for patient representatives in Canada Yes	Opportunities for patient representatives in Canada No
The patient experience on healthcare boards and committees	The patient experience on healthcare boards and committees Yes	The patient experience on healthcare boards and committees No
What would be required of me as a patient representative?	What would be required of me as a patient representative? Yes	What would be required of me as a patient representative? No
Decision making in healthcare - the role of various agencies	Decision making in healthcare - the role of various agencies Yes	Decision making in healthcare - the role of various agencies No
The science of cancer	The science of cancer Yes	The science of cancer No

Other (please specify)

Thank you for completing this survey! The information you provided will help the Canadian Cancer Survivor Network design educational materials for patients, survivors and family members better prepare themselves to act as patient representatives.

If you are interested in accessing educational materials or becoming a patient representative, please contact CCSN at jmanthorne@survivornet.ca