Screen Reader Mode Icon
At Lymphoma Australia, we deeply value the stories of resilience and courage shared by patients, caregivers, donors, supporters, and friends touched by lymphoma or CLL. Each personal journey sheds light on the diverse experiences faced during diagnosis, treatment, and beyond. Your story not only helps to raise vital awareness about lymphoma and CLL but also provides inspiration and comfort to others facing similar challenges.
We understand that sharing such personal experiences is a significant decision, and we are honoured to provide a platform where your voice can make a meaningful impact. Our dedicated team will handle your story with care, ensuring your comfort and privacy throughout the process.
Please take a moment to share your story using the fields below. Our team will be in touch with you prior to publishing and to confirm the details submitted.

If you would prefer to email us your story, please send a Word doc. file to enquiries@lymphoma.org.au

Contact us:
Lymphoma Australia
E: enquiries@lymphoma.org.au
P: 1800 953 081

Question Title

* 1. First name

Question Title

* 2. Last name

Question Title

* 3. Email address

Question Title

* 4. Phone number

Question Title

* 5. State

Question Title

* 6. Postcode

Question Title

* 7. Please indicate your connection to Lymphoma Australia:

Question Title

* 8. What is your lymphoma subtype (if known)?

Question Title

* 9. What was the age range at diagnosis? (Optional)

Question Title

* 10. If you are comfortable sharing, could you please describe how and when the diagnosis was received? We understand this was a challenging time for you or your loved one; please share your experience openly.

Question Title

* 11. What stage is the individual at in their lymphoma journey?

Question Title

* 12. Describe any symptoms experienced before, during, and after treatment, if known. Your insights could help others facing similar situations.

Question Title

* 13. If applicable, please share details about the treatment(s) received and any side effects experienced.

Question Title

* 14. How did you find accessing treatment? Did you have to relocate or travel to another state?

Question Title

* 15. From your perspective, what were the main challenges faced since the diagnosis (eg emotional, mental health, physical, financial etc)? How were these challenges managed?

Question Title

* 16. Was it difficult to access support during this time? If so, please explain.

Question Title

* 17. How was the balance between work, family, and other commitments managed during diagnosis and treatment?

Question Title

* 18. How did you or the person you care for first learn about Lymphoma Australia's services?

Question Title

* 19. Did you or the person you support access any of Lymphoma Australia's services, such as our website resources, patient treatment pack, webinars, face to face events, support groups, nurse care line, etc?

Question Title

* 20. How has Lymphoma Australia helped you or the person you support? eg. through resources, attending webinars, patient packs, online support groups, Facebook groups, connecting with nurses, help to access trials etc.

Question Title

* 21. Based on your experience, what advice would you give to someone who has recently received a lymphoma/CLL diagnosis? Is there anything you wish you had known earlier or that helped you along the way?

Question Title

* 22. Please share any further details about your experience with lymphoma/CLL that you are comfortable sharing.

Your unique perspective can provide comfort and guidance to others in similar situations.

Please know that you can change, update or delete parts of your story, or in its entirety, at any time by contacting us.

Question Title

* 23. Consent & Privacy
When sharing patient stories, Lymphoma Australia will protect the privacy of patients. Do you consent to Lymphoma Australia publishing your first name, subtype (if provided) and information from your responses to questions #9 - #22 in online and printed communications? eg. Newsletters, Facebook, Instagram and more.
I understand I can contact Lymphoma Australia at any time to request my story be removed, or edited.

Question Title

* 24. Using my story for fundraising

Question Title

* 25. (Optional) Please provide an image of yourself. This can be before/after/during treatment. If you have more images you would like to share (we encourage you to share several if possible), please email them to fundraise@lymphoma.org.au.

By uploading an image, you consent to Lymphoma Australia publishing this image on our website and social media channels. If other people are in the photo, I also agree that they have given consent.

PDF, DOC, DOCX, PNG, JPG, JPEG, GIF file types only.
Choose File

Question Title

* 26. (Optional) Lymphoma Australia may share parts of your answers to questions #9, #10 and #11 on our social media. NOTE: A draft will be sent to you prior to posting. If you would like us to tag you on social media in posts containing your story, please include links to your social media pages below:

Question Title

* 27. Would you like to sign up for our email list to receive updates and information from Lymphoma Australia?

Question Title

* 28. Would you like someone from our team to contact you to discuss your story further or its use? Your comfort and preferences are important to us.

0 of 28 answered
 

T