Patient Pathway and Impact of Sarcoma from the Perspective of Patients in the USA Questionnaire

Sarcoma Foundation of America (SFA) created this survey to understand the patient pathways and perceptions surrounding a sarcoma journey. Our goal is to share this information with the sarcoma community to improve outcomes. While we continuously hear individual stories of sarcoma patients, this survey will help amplify these stories and bring together the broad range of lived experiences of sarcoma patients to help improve outcomes for patients with this rare cancer.

This survey is vitally important as we need to collect data for sarcoma subtypes to help advance research and effective treatments. The survey will gather data on patient experiences that can be overlayed with clinical data to add greater dimension and comprehensiveness of our understanding of the impacts of sarcoma. We hope this will help speed up getting more approved and less toxic treatments available to patients.

Additionally, leveraging the data collected in the survey will help spur investments by the pharmaceutical industry, providing them a safety net to invest in the sarcoma patient populations.

Your participation is critical to ensuring the patient voice and experience is included in the sarcoma landscape. Moreover, our ability to look across subtypes for common experiences, potential treatments, and impacts can greatly advance our knowledge about sarcoma.

We will provide results to all participants once the data is final. Our goal is to publish this data so that it can be used as a resource to drive advancements in sarcoma. We very much appreciate your time and contribution to the sarcoma community.

(IRB Protocol ID 0686)