The South Dakota Respite Coalition is gathering information on respite through this survey to improve access to respite by South Dakota caregivers. This survey is to learn more about your experience as a caregiver with respite. In order to really gauge the need for respite for families across the state, we would like to hear from a variety of caregivers- from parents of children with special needs to adult children caring for their aging parents, and more. Your answers will be kept private and your name will not be on the survey. This survey is optional which means that it is your decision whether or not you want to complete.
Lifespan Respite is temporary or short-term care of a person of any age provided by an individual other than the person’s usual or primary caregiver. Respite is time away (a short break) for the primary caregiver who has the daily responsibilities of caregiving.
Directions: Please respond to the following questions which best describe your situation and experience. Complete a separate survey for each person in your household who relies on you as their primary caregiver due to disability, chronic medical condition (e.g., Rheumatoid Arthritis, Cancer, COPD, Heart Disease, Parkinson’s Disease, etc.) or due to aging or primary diagnosis (e.g., ALS, Alzheimer’s, Autism, Brain Injury, Cerebral Palsy, Dementia, Developmental Disability, Epilepsy, Huntington’s Disease, Mental Health, Multiple Sclerosis, Paraplegia, Stroke, etc.).