SIOP Advocacy Toolkit Survey

This survey is for SIOP members who have been involved in advocacy efforts in some way, or would like to be.

We are developing an advocacy toolkit to support you in driving meaningful change through governments and institutions.

Your input will be invaluable in ensuring the toolkit meets your needs and will directly shape the resources we develop to support our members' advocacy.

As a thank you, completed responses will enter a draw to win a free congress registration for SIOP 2025 in Amsterdam!

Please take 5 minutes to share your ideas and experiences.

Current Advocacy Efforts

Question Title

* 1. What type of advocacy have you been/would you like to be involved in? (Select all that apply)

Policy change

Public awareness campaigns

Government engagement

Institutional collaboration

Funding and resource allocation

Primary healthcare professional Education for Early Diagnosis

Other (please specify)

Question Title

* 2. What are the main challenges you face to your advocacy efforts? (Select all that apply)

Lack of knowledge or resources

Limited access to decision-makers

Difficulty in coordinating with others

Time constraints

Insufficient funding

Competing health priorities at local/national level

Language barriers

Other (please specify)

Advocacy Needs

Question Title

* 3. What specific areas of support do you think would be useful for your advocacy efforts? (Select all that apply)

Access to policy briefs and data

Guidance on engaging policymakers and governments

Tools for organising public campaigns

Training in advocacy strategies

Case studies of successful advocacy

Collaborating with SIOP members, Networks & Continental branches

Other (please specify)

Question Title

* 4. Which of the following formats would be most useful for advocacy tools? (Select all that apply)

Printable guides

Web-based resources

Webinars

Video tutorials

One-on-one mentorship or consultation

Other (please specify)

Question Title

* 5. Would you benefit from a structured advocacy training programme offered by SIOP?

Yes

Other (please specify)

Question Title

* 6. In which of the following areas would you like more advocacy guidance? (Select all that apply)

Communicating with policymakers

Building coalitions and networks

Engaging the media

Lobbying for funding/resources

Integrating advocacy into clinical or research work

Other (please specify)

Collaboration and Engagement

Question Title

* 7. How can SIOP best facilitate collaboration among members on advocacy initiatives? (Select all that apply)

Online forums or discussion groups

Regular webinars or meetings

Shared resources and templates

Regional or national advocacy groups

Advocacy oriented session(s) during SIOP meetings

Translated materials

Other (please specify)

Advocacy Needs

Question Title

* 8. Rate the following on a scale of how useful they would be to your advocacy (Most useful at the top)

Additional Feedback

Question Title

* 9. What other support or resources would enhance your ability to advocate for childhood cancer at a local, national, or international level?

About You

Question Title

* 10. In what country do you work?

Question Title

* 11. What is your job role?

Young SIOP member under 40 yrs, Student, Fellow, Clinician in Training

Nurse, Nurse Educator, Nurse Leader, Nurse Researcher

Medical Doctor, Physician, Paediatric Oncologist

Psychologist, Social Worker

Physical Therapist, Rehabilitation Professional

Surgeon

Radiotherapist, Radiation Oncologist

Pharmacist

Parent, Survivor of Childhood Cancer, Advocate

Nutritionist, Dietician

Academic, Researcher

Child Life Specialist

Industry Representative

Other (please specify)

Question Title

* 12. Years of Experience in Paediatric Oncology

1-5

6-10

11-15

16-20

21-25

26-30

31-35

36+

SIOP Advocacy Toolkit Survey

Question Title

* 1. What type of advocacy have you been/would you like to be involved in? (Select all that apply)

Question Title

* 2. What are the main challenges you face to your advocacy efforts? (Select all that apply)

Question Title

* 3. What specific areas of support do you think would be useful for your advocacy efforts? (Select all that apply)

Question Title

* 4. Which of the following formats would be most useful for advocacy tools? (Select all that apply)

Question Title

* 5. Would you benefit from a structured advocacy training programme offered by SIOP?

Question Title

* 6. In which of the following areas would you like more advocacy guidance? (Select all that apply)

Question Title

* 7. How can SIOP best facilitate collaboration among members on advocacy initiatives? (Select all that apply)

Question Title

* 8. Rate the following on a scale of how useful they would be to your advocacy (Most useful at the top)

Question Title

* 9. What other support or resources would enhance your ability to advocate for childhood cancer at a local, national, or international level?

Question Title

* 10. In what country do you work?

Question Title

* 11. What is your job role?

Question Title

* 12. Years of Experience in Paediatric Oncology

Question Title

* 13. Please provide your email address so we can contact you if you win the free congress registration for SIOP 2025.