Personal Care Advisor Survey

Do you struggle to navigate and understand your health insurance benefits for a child with special health care needs? Would you like an expert who could work with your insurance company to get to solutions faster so you don’t have to? Would you like help preparing for medical appointments, selecting your benefits, or connecting to community supports and services for your family? A Personal Care Advisor can help reduce your administrative burden, stress, and out-of-pocket costs.

An anonymous funder is partnering with Family Voices to get consumer feedback about a Personal Care Advisor service that can help reduce family administrative burden, out-of-pocket costs, and stress.

Insurance & Services

Question Title

* 1. How is your child with special health care needs/disability insured? (Check all that apply)

Employer-sponsored plan through a parent

Tricare

Medicaid based on family income

Medicaid based on medical need

Medicaid Waiver

Children's Health Insurance Plan (CHIP)

Not insured

Other (please specify)

Question Title

* 2. What is your child’s primary clinical diagnosis, if known?

Question Title

* 3. What health care services does your child routinely use? (Check all that apply)

Musculoskeletal

Respiratory

Cardiovascular

Digestive

Genitourinary

Hematological/Blood

Dermatology

Endocrine

Neurological

Genetics

Mental/behavioral

Cancer

Immunology

Speech and Language Therapy

Physical Therapy

Occupational Therapy

Applied Behavioral Analysis

Nutritional services

Durable Medical Equipment

Pharmacy

Other (please specify)

Question Title

* 4. How much time do you spend each week coordinating care for your child (scheduling and prepping for doctor appointments, dealing with insurance, etc)?

Less than 1 hour

1 to 4 hours

5 to 10 hours

11 or more hours

Personal Care Advisor Service Model

Question Title

* 5. Please select how helpful each of the below services would be to you and your family.

	Very Helpful	Helpful	Neutral	Sort of Helpful	Not Helpful
Diagnosis-specific expertise	Diagnosis-specific expertise Very Helpful	Diagnosis-specific expertise Helpful	Diagnosis-specific expertise Neutral	Diagnosis-specific expertise Sort of Helpful	Diagnosis-specific expertise Not Helpful
Help finding providers and specialists	Help finding providers and specialists Very Helpful	Help finding providers and specialists Helpful	Help finding providers and specialists Neutral	Help finding providers and specialists Sort of Helpful	Help finding providers and specialists Not Helpful
Appointment scheduling support	Appointment scheduling support Very Helpful	Appointment scheduling support Helpful	Appointment scheduling support Neutral	Appointment scheduling support Sort of Helpful	Appointment scheduling support Not Helpful
Help preparing for appointments	Help preparing for appointments Very Helpful	Help preparing for appointments Helpful	Help preparing for appointments Neutral	Help preparing for appointments Sort of Helpful	Help preparing for appointments Not Helpful
Help with insurance issues	Help with insurance issues Very Helpful	Help with insurance issues Helpful	Help with insurance issues Neutral	Help with insurance issues Sort of Helpful	Help with insurance issues Not Helpful
Help coordinating across multiple benefit types (medical, pharmacy, behavioral)	Help coordinating across multiple benefit types (medical, pharmacy, behavioral) Very Helpful	Help coordinating across multiple benefit types (medical, pharmacy, behavioral) Helpful	Help coordinating across multiple benefit types (medical, pharmacy, behavioral) Neutral	Help coordinating across multiple benefit types (medical, pharmacy, behavioral) Sort of Helpful	Help coordinating across multiple benefit types (medical, pharmacy, behavioral) Not Helpful
Help coordinating dual coverage benefits	Help coordinating dual coverage benefits Very Helpful	Help coordinating dual coverage benefits Helpful	Help coordinating dual coverage benefits Neutral	Help coordinating dual coverage benefits Sort of Helpful	Help coordinating dual coverage benefits Not Helpful
Connections to community supports	Connections to community supports Very Helpful	Connections to community supports Helpful	Connections to community supports Neutral	Connections to community supports Sort of Helpful	Connections to community supports Not Helpful
Annual Benefit plan enrollment guidance	Annual Benefit plan enrollment guidance Very Helpful	Annual Benefit plan enrollment guidance Helpful	Annual Benefit plan enrollment guidance Neutral	Annual Benefit plan enrollment guidance Sort of Helpful	Annual Benefit plan enrollment guidance Not Helpful
Help tracking medical records	Help tracking medical records Very Helpful	Help tracking medical records Helpful	Help tracking medical records Neutral	Help tracking medical records Sort of Helpful	Help tracking medical records Not Helpful

Question Title

* 6. Please select the number of times a year you might use the services below.

	0	1	2	3	4	5 or more
Diagnosis-specific expertise	Diagnosis-specific expertise 0	Diagnosis-specific expertise 1	Diagnosis-specific expertise 2	Diagnosis-specific expertise 3	Diagnosis-specific expertise 4	Diagnosis-specific expertise 5 or more
Help finding providers and specialists	Help finding providers and specialists 0	Help finding providers and specialists 1	Help finding providers and specialists 2	Help finding providers and specialists 3	Help finding providers and specialists 4	Help finding providers and specialists 5 or more
Appointment scheduling support	Appointment scheduling support 0	Appointment scheduling support 1	Appointment scheduling support 2	Appointment scheduling support 3	Appointment scheduling support 4	Appointment scheduling support 5 or more
Help preparing for appointments	Help preparing for appointments 0	Help preparing for appointments 1	Help preparing for appointments 2	Help preparing for appointments 3	Help preparing for appointments 4	Help preparing for appointments 5 or more
Help with insurance issues	Help with insurance issues 0	Help with insurance issues 1	Help with insurance issues 2	Help with insurance issues 3	Help with insurance issues 4	Help with insurance issues 5 or more
Help coordinating across multiple benefit types (medical, pharmacy, behavioral)	Help coordinating across multiple benefit types (medical, pharmacy, behavioral) 0	Help coordinating across multiple benefit types (medical, pharmacy, behavioral) 1	Help coordinating across multiple benefit types (medical, pharmacy, behavioral) 2	Help coordinating across multiple benefit types (medical, pharmacy, behavioral) 3	Help coordinating across multiple benefit types (medical, pharmacy, behavioral) 4	Help coordinating across multiple benefit types (medical, pharmacy, behavioral) 5 or more
Help coordinating dual coverage benefits	Help coordinating dual coverage benefits 0	Help coordinating dual coverage benefits 1	Help coordinating dual coverage benefits 2	Help coordinating dual coverage benefits 3	Help coordinating dual coverage benefits 4	Help coordinating dual coverage benefits 5 or more
Connections to community supports	Connections to community supports 0	Connections to community supports 1	Connections to community supports 2	Connections to community supports 3	Connections to community supports 4	Connections to community supports 5 or more
Annual Benefit plan enrollment guidance	Annual Benefit plan enrollment guidance 0	Annual Benefit plan enrollment guidance 1	Annual Benefit plan enrollment guidance 2	Annual Benefit plan enrollment guidance 3	Annual Benefit plan enrollment guidance 4	Annual Benefit plan enrollment guidance 5 or more
Help tracking medical records	Help tracking medical records 0	Help tracking medical records 1	Help tracking medical records 2	Help tracking medical records 3	Help tracking medical records 4	Help tracking medical records 5 or more

Question Title

* 7. What other service not listed here would you want a Personal Care Advisor to provide?

Current Resources and Support

Question Title

* 8. Where do you go for help managing your child’s health care needs? (Check all that apply)

Health Insurer

Primary Care Doctor

Care Coordinator

Case Manager

Family-to-Family Health Information Center

Family Member

Friend

Other (please specify)

Question Title

* 9. How do you find supports for yourself or your child? (Check all that apply)

Health Insurer

Primary Care Doctor

Care Coordinator

Case Manager

Family-to-Family Health Information Center

Parent-to-Parent USA

Family Member

Friend

Internet Search

Other (please specify)

Question Title

* 10. If a Personal Care Advisor service was available to you, would you be interested in signing up?

Yes