This survey is an effort led by the Patient Inclusion Council (PIC) and seeks to determine the many factors that can lead to affordability and access challenges for patients living in the United States. The survey was created by research professionals, patient research partners (PRPs), and patient organizations.

The results of the study will be shared with Prescription Drug Affordability Boards (PDABs), the Centers for Medicare & Medicaid Services (CMS), and legislators in an effort to better inform drug affordability reviews and legislative efforts connected to them. By understanding patient issues and concerns, we can better create health policies that address these needs and foster better health for patients.

We hope to continue working with all stakeholders to address the high costs of healthcare in ways most beneficial to the people relying on the medication. Please share this survey with anyone you know in the United States who is prescribed a drug that is consider high cost.

CONSENT TO PARTICIPATE:
  • We invite patients and caregivers in the United States to share their perspectives via the survey.
  • Voluntary Participation: Your participation in this survey is entirely voluntary. You may choose to participate or withdraw at any time without any penalty or loss of benefits.
  • Confidentiality: No identifying information will be included in any reports or publications resulting from this study. If you choose to provide your name and contact information at the end of the survey, this will NOT be published, nor will your name or any identifiable information be shared.
  • Risks and Benefits: There are minimal risks associated with participating in this survey. However, you may benefit by contributing data to help improve prescription drug affordability and accessibility.
  • Duration: The survey will take approximately 15 minutes to complete.


By starting this survey, you are consenting to participate. You may stop participating at any time.

If you are only interested in taking this survey to see the question, please view them HERE.


The Ensuring Access through Collaborative Health (EACH) and Patient Inclusion Council (PIC) is a two-part coalition that unites national and state organizations (EACH), as well as patients and caregivers (PIC), to advocate for drug affordability policies that benefit patients.

The Patient Inclusion Council aims to empower patients and caregivers to shape healthcare policy through peer-led education, perspective sharing, and activities to ensure patient-reported needs are incorporated into drug affordability solutions.

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