Dental Care Patient Survey

The aim of this survey is to increase understanding of the dental care experience of individuals living with bleeding disorders. The results of this survey may be published.

This survey has been funded and made in collaboration with Nordic Pharma UK. No patient identifiable information will be passed to Nordic Pharma UK

UK-NPSP-2400003

February 2024

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* 1. What is your specific bleeding disorder?

Von Willebrand disease

Haemophilia A

Haemophilia B

Other (specify)

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* 2. If you attend a UK Haemophilia Centre, which one?

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* 3. How would you classify your disease severity?

Mild

Moderate

Severe

Unsure

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* 4. Age

Under 18

18-24

25-34

35-44

45-54

55-64

65 or over

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* 5. Sex

Female

Male

Non-Binary

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* 6. How often do bleeding gums impact your quality of life?

Always

Often

Occasionally

Rarely

Never

Question Title

* 7. How often do you experience bleeding gums when brushing your teeth?

Always

Often

Occasionally

Rarely

Never

Question Title

* 8. If you develop bleeding gums at home, how do you manage it?

Contact dentist

Contact GP

Contact Specialist Centre

Use medication provided to you by a healthcare professional to manage such bleeds

Nothing

Manage yourself using other measures (specify)

Question Title

* 9. How do you access dental care?

Community dentist

Through a haemophilia centre

Community dentist and a haemophilia centre

Other (specify)

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* 10. How often do you attend the dentist?

More than twice a year

Twice a year

Once a year

Less than once a year

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* 11. As a person living with a bleeding disorder, on a scale of 1-5 (1 being very easy and 5 being very challenging) how have you found accessing routine dental care?

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* 12. As a person living with a bleeding disorder, on a scale of 1-5 (1 being very easy and 5 being very challenging) how have you found accessing dental care for more serious procedures?

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* 13. Does your centre, if you have one, work out a treatment plan to cover your bleeding disorder for more serious dental procedures?

Yes

No experience

N/A

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* 14. Are you satisfied with your dental care, on a scale of 1-5 (1 being very dissatisfied and 5 being very satisfied)?

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* 15. How often do you experience bleeding gums when receiving dental treatment?

Always

During routine hygiene treatments and invasive procedures (extractions)

Only during invasive procedures (extractions)

Never

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* 16. Do you take any measures to prevent gum bleeding prior to receiving dental treatment, if so specify?

Yes (specify)

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* 17. If you experience bleeding gums during dental treatment, what is your treatment preference?

Tablets

Mouthwash

Local measure (gauze etc)

Other (specify)

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* 18. Does the prospect of potentially experiencing bleeding gums make you reluctant to seek dental treatment?

Always

Often

Occasionally

Rarely

Never

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* 19. Have you ever needed to go to your local haemophilia centre to get further treatment to manage prolonged bleeding after dental treatment?

Always

Often

Occasionally

Rarely

Never

Dental Care Patient Survey

Question Title

* 1. What is your specific bleeding disorder?

Question Title

* 2. If you attend a UK Haemophilia Centre, which one?

Question Title

* 3. How would you classify your disease severity?

Question Title

* 4. Age

Question Title

* 5. Sex

Question Title

* 6. How often do bleeding gums impact your quality of life?

Question Title

* 7. How often do you experience bleeding gums when brushing your teeth?

Question Title

* 8. If you develop bleeding gums at home, how do you manage it?

Question Title

* 9. How do you access dental care?

Question Title

* 10. How often do you attend the dentist?

Question Title

* 11. As a person living with a bleeding disorder, on a scale of 1-5 (1 being very easy and 5 being very challenging) how have you found accessing routine dental care?

Question Title

* 12. As a person living with a bleeding disorder, on a scale of 1-5 (1 being very easy and 5 being very challenging) how have you found accessing dental care for more serious procedures?

Question Title

* 13. Does your centre, if you have one, work out a treatment plan to cover your bleeding disorder for more serious dental procedures?

Question Title

* 14. Are you satisfied with your dental care, on a scale of 1-5 (1 being very dissatisfied and 5 being very satisfied)?

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* 15. How often do you experience bleeding gums when receiving dental treatment?

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* 16. Do you take any measures to prevent gum bleeding prior to receiving dental treatment, if so specify?

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* 17. If you experience bleeding gums during dental treatment, what is your treatment preference?

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* 18. Does the prospect of potentially experiencing bleeding gums make you reluctant to seek dental treatment?

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* 19. Have you ever needed to go to your local haemophilia centre to get further treatment to manage prolonged bleeding after dental treatment?

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* 20. Are there any suggestions you could make to improve your dental care experience?

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* 21. How does bleeding gums impact you?

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* 22. Further comments regarding dental care for people living with a bleeding disorder.