Stroke Survivor and Caregiver Social Media Survey

Dear Participant

We are conducting a study. It is about internet social sites. People who have stroke and their caregivers can feel isolated. And they can feel lonely. We want to learn how social media can make feelings of isolation and loneliness better or worse. We would like your help. If you want to help, please do a survey today. You do not need to say who you are. Only the people who created this survey will see your answers. All of the materials are kept private. You do not have to take the survey if you do not want to. The results of this survey may be helpful to other survivors and caregivers. This survey should take about 5 minutes to complete.

Thank you for your consideration!

Maureen Mathews, Jan Jahnel, Marylee Nunley, Larry Schaer

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* 1. This survey was completed by

Survivor

Caregiver

Other (please specify)

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* 2. What is your age?

<22

22-35

36-50

51-65

66-70

71-75

76-85

86 or greater

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* 3. Sex/gender or do you identify as

Female

Male

Other

Prefer not to say

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* 4. What is your Race/Ethnicity

White

Black or African American

Hispanic or Latino

Asian or Asian American

American Indian or Alaska Native

Native Hawaiian or other Pacific Islander

Prefer not to answer

Other (please specify)

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* 5. Where is your place of residence?

City (>75,000 people)

Suburban (10,000-75,000 people)

Rural (< 10,000 people)

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* 6. Which side of your brain was affected by your stroke?

Left

Right

Both

Unsure

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* 7. I live

Alone

With family

Another person

With caregiver (not family)

Other (please specify)

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* 8. Do you currently use any of the following?

Facebook

Instagram

Twitter

Snapchat

Tik Tok

None

Other (please specify)

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* 9. How has COVID changed your use of Facebook or the other social sites you checked above?

More use

Less use

About the same

Not sure

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* 10. Did you use this/these social sites(s) or any others prior to COVID (prior to March/April 2020) check all that apply

Facebook

Instagram

Twitter

Snapchat

Tik Tok

None

Other (please specify)

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* 11. What benefit do you gain from Social Media (check all that apply)?

Online Support Group

Facebook friends/socialization

Information

Exercise

Comedy/entertainment

Other (please specify, for example, able to see people, but not talk with them)

None

Other (please specify)

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* 12. If you have experienced social isolation/loneliness, how long has this been?

Prior to stroke

Since beginning of stroke recovery

Recent past (within past 6 months)

Last year or two

I am isolated, but it doesn't bother me

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* 13. Did the Pandemic affect your feelings of isolation?

Yes

Unsure

Other (please specify)

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* 14. Has the use of Social Sites helped you feel less alone?

Yes

Unsure

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* 15. On average, how often do you visit one or more of the social sites?

Daily

Several times per day

Weekly

Monthly

Other (please specify)

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* 16. How did you learn of the social sites you visit? (check all that apply)

Friend(s)

Family

Nurse, therapist, other health care person?

Social organization

Support group

Searched for resources on the internet

None of the above

Other (please specify)

Stroke Survivor and Caregiver Social Media Survey

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* 1. This survey was completed by

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* 2. What is your age?

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* 3. Sex/gender or do you identify as

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* 4. What is your Race/Ethnicity

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* 5. Where is your place of residence?

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* 6. Which side of your brain was affected by your stroke?

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* 7. I live

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* 8. Do you currently use any of the following?

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* 9. How has COVID changed your use of Facebook or the other social sites you checked above?

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* 10. Did you use this/these social sites(s) or any others prior to COVID (prior to March/April 2020) check all that apply

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* 11. What benefit do you gain from Social Media (check all that apply)?

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* 12. If you have experienced social isolation/loneliness, how long has this been?

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* 13. Did the Pandemic affect your feelings of isolation?

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* 14. Has the use of Social Sites helped you feel less alone?

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* 15. On average, how often do you visit one or more of the social sites?

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* 16. How did you learn of the social sites you visit? (check all that apply)

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* 17. Do you have any other comments you would like to give us on this topic?