1. Questions for the Usher Community

Connect Research Ltd are conducting a project on behalf Usher Syndrome Ireland.

As part of the project that we spoke about at USH Connect on the 21st September, we would like to get your perspectives on the data needs of the Usher community.
If you are over 18 years old, we would appreciate it if you could complete the following questions, it should only take a few minutes.
This information will be incorporated into the final report. By answering the questions you are providing consent for us to use the information for the report.

Please be assured that your responses will be anonymous. Results may be presented at meetings or in reports or publications.


If you have any queries please contact: Jackie: jboylan@connectresearch.co.uk


Consent

If you wish to take part, please indicate your consent below by ticking all 3 boxes:

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* 1. Please read the following statements and confirm that you would like to take part by checking the boxes

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* 2. Please tell us, you are a:

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* 3. Please tell us which country you live in:

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* 4. Of the below, what would you prioritise for research into treatment for Usher syndrome?

Please rank from 1 to 7, with 1 being the most important and 7 being the least important

You can click your mouse and drag each answer to the place you would like it to be

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* 5. Moving on to other research priorities, how would you prioritise the other research goals for Usher syndrome?

Please rank 1 – 3, with 1 being most important and 3 being least important

You can click your mouse and drag each answer to the place you would like it to be

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* 6. Please share any other priorities you can think of:

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* 7. Would you be interested in contributing to data collection that would support research into Usher syndrome e.g. joining a registry?

 
 17% of survey complete.

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