Introduction

What is the purpose of this survey?
The Amyloidosis Research Consortium (ARC) is conducting this online survey to understand the experiences and needs of amyloidosis patients and their caregivers.

What am I asked to do?
This online survey will take about 30 minutes to complete. Participation is voluntary and you can leave the survey at any time. Responses gained through this survey will be confidential. Patient privacy is secured because all responses are de-identified and caregiver comments cannot be traced back to the patient.

Will I be paid for taking part in this research?
You will not be paid for taking part in this research. However, U.S. residents who complete the survey can enter a drawing for a chance to win a $50 gift card as a thank you for your participation. To be entered, simply provide your name and email after completing the survey.

What if I have questions?
If you need help completing the survey or have any questions, please contact the ARC team at 617-467-5170 or email Sabrina Rebello at srebello@arci.org.

You can read a more detailed research consent here. This gives you control over your involvement in the research and protects your rights as a participant. The consent form provides crucial information about the study, including its purpose, procedures, potential risks and benefits, allowing you to make an informed decision about whether or not to participate. By participating in this survey, you are indicating that you have read the description of the survey and that you agree to the use of your data as described in the research consent form.

Click Next to confirm you are eligible for this survey and agree to participate.
To be eligible for this survey you are a patient with amyloidosis and have reached the age of majority (also known as the legal age, which in most places is 18 years old).
 
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