Personality and an Engaged Response Style in Patients Diagnosed with Multiple Sclerosis |
Introduction
Invitation to Participate in a Research Project
If you are a U.S. citizen and an adult over the age of 18 and diagnosed with multiple sclerosis, you are invited to participate in this voluntary research study.
You have been invited to participate in a research experiment titled Personality and an Engaged Response Style in Patients Diagnosed with Multiple Sclerosis. The current research study is being conducted by graduate student, Julie Szarowski-Cox (Department of Counseling, School and Educational Psychology, SUNY, Buffalo, NY, 14260-1000; email: juliesza@buffalo.edu) under the advisement of Dr. Gloria K. Lee (email glee4@buffalo.edu).
This research study is intended for adult participants who are 18 years of age and over. If you are not yet 18, please do not participate in this study.
Volunteer Status
If you decide to participate, please proceed with the next page and begin the survey. We understand your participation is completely voluntary and you can withdraw from participation any time even after you have started.
JOINING OF YOUR OWN FREE WILL (VOLUNTEERING FOR THE STUDY):
Your participation is voluntary. Your refusal to participate will involve no penalty or loss of benefits to which you are otherwise entitled as a client of your psychologists and medical doctors. You do not have to answer every question and may refuse to answer any questions that you do not want to answer. You may withdraw from the study at any time by contacting the investigator and all data that can still be identifiably attributed to you will be withdrawn by the investigator and destroyed.
Purpose
I am conducting a survey exploring purpose in life and life goals of individuals diagnosed with multiple sclerosis. The content is to study your goals, personality and response style and how these relate to your own mental well being.
Procedure
You will be asked to complete an online survey on various aspects of life in relation to your experience of having a diagnosis of multiple sclerosis. Those aspects of life include (a) basic demographic information, (b) information regarding your diagnosis of MS, (c) personality, (d) response style, e) goals, f) quality of life.
Time Commitment
Please complete the basic demographic information and all the surveys at a convenient time and pace. It may take as long as 30-45 minutes in total to complete. I understand you are busy and may have many obligations; your participation is greatly appreciated.
Risks
The potential risk that you may encounter will be: 1) physical fatigue from completing the survey all at once; 2) feeling discomfort temporarily by answering some of the personal items in the survey; and 3) confidentiality.
In order to address the potential fatigue, I encourage you to take your time completing the survey at a convenient time and pace. In order to prevent any potential emotional discomfort generated as a result of completing this survey, I would encourage you to: 1) discontinue the survey immediately if you feel upset at that time 2) contact myself (see my e-mail at the end) or seek professional assistance from your local service provider; 3) a list of community mental health services (both national and online) will be provided at the beginning of the survey in case you require some professional assistance. I would encourage you to be aware of the numbers and weblinks first before you start the survey so that you can have the numbers to call if you need some professional assistance any time.
Benefits
There is likely to be no direct benefit to you for participating in this study, but it will help us (and other therapists) to develop more effective intervention programs that address the needs of individuals diagnosed with multiple sclerosis.
Payment: There is no cost to you to participate in this study.
If you are a U.S. citizen and an adult over the age of 18 and diagnosed with multiple sclerosis, you are invited to participate in this voluntary research study.
You have been invited to participate in a research experiment titled Personality and an Engaged Response Style in Patients Diagnosed with Multiple Sclerosis. The current research study is being conducted by graduate student, Julie Szarowski-Cox (Department of Counseling, School and Educational Psychology, SUNY, Buffalo, NY, 14260-1000; email: juliesza@buffalo.edu) under the advisement of Dr. Gloria K. Lee (email glee4@buffalo.edu).
This research study is intended for adult participants who are 18 years of age and over. If you are not yet 18, please do not participate in this study.
Volunteer Status
If you decide to participate, please proceed with the next page and begin the survey. We understand your participation is completely voluntary and you can withdraw from participation any time even after you have started.
JOINING OF YOUR OWN FREE WILL (VOLUNTEERING FOR THE STUDY):
Your participation is voluntary. Your refusal to participate will involve no penalty or loss of benefits to which you are otherwise entitled as a client of your psychologists and medical doctors. You do not have to answer every question and may refuse to answer any questions that you do not want to answer. You may withdraw from the study at any time by contacting the investigator and all data that can still be identifiably attributed to you will be withdrawn by the investigator and destroyed.
Purpose
I am conducting a survey exploring purpose in life and life goals of individuals diagnosed with multiple sclerosis. The content is to study your goals, personality and response style and how these relate to your own mental well being.
Procedure
You will be asked to complete an online survey on various aspects of life in relation to your experience of having a diagnosis of multiple sclerosis. Those aspects of life include (a) basic demographic information, (b) information regarding your diagnosis of MS, (c) personality, (d) response style, e) goals, f) quality of life.
Time Commitment
Please complete the basic demographic information and all the surveys at a convenient time and pace. It may take as long as 30-45 minutes in total to complete. I understand you are busy and may have many obligations; your participation is greatly appreciated.
Risks
The potential risk that you may encounter will be: 1) physical fatigue from completing the survey all at once; 2) feeling discomfort temporarily by answering some of the personal items in the survey; and 3) confidentiality.
In order to address the potential fatigue, I encourage you to take your time completing the survey at a convenient time and pace. In order to prevent any potential emotional discomfort generated as a result of completing this survey, I would encourage you to: 1) discontinue the survey immediately if you feel upset at that time 2) contact myself (see my e-mail at the end) or seek professional assistance from your local service provider; 3) a list of community mental health services (both national and online) will be provided at the beginning of the survey in case you require some professional assistance. I would encourage you to be aware of the numbers and weblinks first before you start the survey so that you can have the numbers to call if you need some professional assistance any time.
Benefits
There is likely to be no direct benefit to you for participating in this study, but it will help us (and other therapists) to develop more effective intervention programs that address the needs of individuals diagnosed with multiple sclerosis.
Payment: There is no cost to you to participate in this study.