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STATE OF THE ART ON THE PEDIATRIC AND NEONATAL LUNG/HEART TRANSPLANTATION IN EUROPE

1.

Lung or heart/lung transplantation is rarely performed in infants and neonates. It is generally thought to be a risky and extremely difficult procedure, but it is also true that only a few patients might require this intervention. In fact, only few life-threatening and extremely rare conditions may pose the indication for a so early transplantation. This means that the expertise is not so diffused and this may bias the evaluation of the transplant need and its feasibility and suitability. Actually, good results have been reported also in the smallest patients in North-American centers (http://www.ncbi.nlm.nih.gov/pubmed/25242126), describing this transplantation as a reality and depicting many unmet needs.

There are surgical and medical needs, there is a need to identify better the candidates, to do research to optimize their medical treatment, to create network to centralize their surgical treatment and increase surgical expertise and finally to understand the best medical pre-post surgical treatment including "bridge" procedures. All this is surely too advanced if the need to know more and take a picture on the present situation is not met.

Scope of this survey is in fact to take a picture of physicians awareness, availability and knowledge about lung/heart transplantation and related conditions in Europe. From this point onwards the other steps could be taken to improve the health of the most ill and unlucky patients
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1.Did you ever performed or referred a patient  for a lung or heart-lung transplantation before 12 months of age?
2.How many of these transplantations have been performed, if any?
3.Where were these patients transplanted or referred  ? (no need to answer if you had no case)
4.Do you have a pediatric lung or heart-lung transplantation program in your Hospital? If this is the case, how many lung or heart-lung transplantation are you performing in pediatric patients (0-18 years)? 
5.Are you aware of some data about the outcomes of lung or heart-lung transplantation in infants less than 12 months of age? Please elaborate.
6.In your opinion which are the three most important problems for lung or heart-lung transplantation in infants less than 12 months of age? 
7.In your opinion which are the clinical conditions that could benefit the most from lung or heart-lung transplantation in infants less than 12 months of age? Please list them freely.
8.If a dedicated lung or heart-lung transplantantion program for infants less than 12 months of age will be started, would you refer candidate patients with no other therapeutic option?
9.Are you aware of differences across European Countries about lung or heart-lung transplantation policies for infants less than 12 months of age ? (please elaborate)
10.Are you aware of lung or heart-lung transplantation policies for infants less than 12 months of age in North-America or Australia? (please elaborate)
11.Would you refer patients if an European network about lung/heart lung transplantation for infants less than 12 months of age is started ?