ESNR and EAN, together representing neuroradiologists and neurologists across Europe, have joined forces in a working group on the topic of amyloid-related imaging abnormalities (ARIA). After several anti-amyloid antibody drug trials have recently published successful results, and the potential of these drugs to be admitted to the European market, side-effects of these drugs may also become a new reality both in neurology practice as well as for radiology workflows.
The ESNR/EAN ARIA Working Group has therefore designed a survey to enquire among their members regarding their familiarity with the concept of and rating of ARIA, the readiness of their practices to face associated logistic challenges, and any hurdles they foresee and in which ESNR or EAN could take a role in removing these.
This survey is designed to be completed primarily by neurologists and neuroradiologists, but also by other medical professionals involved in the assessment of persons to be treated with amyloid-lowering drugs. If you feel a certain question is not applicable to your situation you can indicate so. Please feel free to forward this survey to any colleagues who you believe will be involved in your center in the care for patients undergoing anti-amyloid treatment or interpreting scans related to ARIA, also if they are not neurologists or neuroradiologists (e.g. geriatricians or psychiatrists).
The survey results will be handled and processed anonymously and will not be used for purposes other than providing summary statistics on the questions asked. We do ask you at the end of the survey to provide the name of the institute at which you work, but this will only be used to enable us to analyze results on an institute level and to avoid redundancy between multiple entries from the same institute. We do however welcome multiple survey entries from the same institute, as we are equally interested to learn individual opinions and experiences.
We thank you on beforehand for filling out this survey. Should you have any questions, please contact Tiago Gil Oliveira on tiago@med.uminho.pt or Roland Wiest on Roland.Wiest@insel.ch.
Kind regards, on behalf of the ARIA Working Group,
Roland Wiest (EAN, on behalf of the SP neuroimaging)
Reinhold Schmidt (EAN, on behalf of the SP dementia)
Frederik Barkhof (ESNR)
Tiago Gil Oliveira (ESNR)
Meike Vernooij (ESNR)
