My Rare Disease Story

Lumanity is committed to amplifying the voices of people living with a rare condition, and using our '29 stories' initiative, we seek to alleviate feelings of isolation, drive awareness for rare diseases, and facilitate more open and authentic conversations about the impact on patients and families.

In bringing your story into the spotlight, we aim to help share information on rare diseases and support the community.

Thank you for sharing your story with us.