Living with Celiac in Long Term Care Facilities Question Title * 1. Who are you filling this survey for: Family member Friend Other (please specify) OK Question Title * 2. Is the person you are filling the survey for currently in a long-term care facility? Yes No Planning to move into one Other (please specify) OK Question Title * 3. How old was the resident when diagnosed with Celiac Disease? <18 18-35 35-60 >60 Don’t know OK Question Title * 4. How long has the resident been in the current facility? <1 year 1-3 years 3-5 years >5 years Don’t know OK Question Title * 5. Did you find it difficult finding a placement in a facility specifically due to celiac disease? Yes No OK Question Title * 6. Other than a gluten-free diet, what other types of diet is the resident following? Just celiac (gluten free) Diabetic Kidney disease (Renal) High protein/ high energy Don't know Other (please specify) OK Question Title * 7. What meal texture your family member is receiving Regular Minced Pureed Don’t know OK Question Title * 8. Did you or a family member discuss at length the requirements for the GF diet with staff? Yes No OK Question Title * 9. If you answered yes to the previous question, who did you discuss it with? Check all that apply. No one discussed the requirements for the GF diet with staff Food service Manager Dietitian Social worker Physician at the LTC home Other (please specify) OK Question Title * 10. How does your family member or friend access food? Check all that apply. Delivered to room Dining Room Buffet Dining Room – Service at table Food from family or friends Other (please specify) OK Question Title * 11. Does your family member require assistance with feeding? No, able to self-feed Yes, some assistance Yes, substantial assistance Don’t know OK Question Title * 12. What types of accommodations are made in the facility to provide gluten-free meals to the resident: OK Question Title * 13. How would you estimate the level of knowledge on gluten-free diet and cross-contamination of the food service staff in the facility? knowledgeable Somewhat knowledgeable Limited knowledge Don't know OK Question Title * 14. How would you estimate the level of knowledge on gluten-free diet and cross-contamination of the staff helping in feeding the resident in the facility? Very knowledgeable Somewhat knowledgeable Limited knowledge Don't know OK Question Title * 15. What your estimation is based on: Check all that apply. Interaction with staff Feedback from other residents or family members Experiencing episodes of CD symptoms Other (please specify) OK Question Title * 16. Rate how confident you are that the resident is receiving uncontaminated food? Very confident Somewhat confident Neutral Somewhat unconfident Very unconfident OK Question Title * 17. How would you rate the quality of the diet (nutrition, variety, quality)? Excellent Good Neutral Bad Very bad OK Question Title * 18. Has the resident had any illnesses directly related to cross-contamination of their celiac diet in the LTC facility? Never 1-3 times > 5 times Don't know OK Question Title * 19. If you answered yes to illness related to cross-contamination question, was the resident ever admitted to hospital for treatment? Yes No Don't know OK Question Title * 20. If you are filling this survey for a family member or friend, is the resident aware of their CD diagnosis (mentally capable): Yes No Somewhat Other (please specify) OK Question Title * 21. What Province is the resident located? AB BC MB NB NL NS ON PE QC SK NT NU YT OK Question Title * 22. Do you have any other comments, questions, or concerns? OK Question Title * 23. Would you like to share your story with us? Name or initials: e-mail address: Phone number: Your story: OK DONE