1. LSD Community survey

 
 3% of survey complete.
This survey is open to people living with Lysosomal Storage Disorders (LSDs), their family members and carers.
A list of LSD conditions can be found here: www.lsdcollaborative.org.uk
By participating in the survey, you can share your views, anonymously and in confidence, about the services you receive now, including clinical care, home care, social care and patient advocacy.
The survey, which should take about 20 minutes to complete, is being conducted by the LSD Collaborative; a network of UK based patient organisations working together to enhance quality of life, and advance standards of care and treatment.
We value your views and experiences and thank you for your participation.

For questions about the survey, please contact the UK LSD Collaborative:

Email: info@lsdcollaborative.org.uk

Website: www.lsdcollaborative.org.uk

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