HOW WILL MY INFORMATION BE KEPT CONFIDENTIAL?
You have the right to have any information about you and your health that is collected, used or disclosed for this study to be handled in a confidential manner. The investigator(s), study staff and the other people listed above will keep the information they see or receive about you confidential, to the extent permitted by applicable laws. Even though the risk of identifying you from the study data is very small, it can never be completely eliminated. Any information sent outside of Canadian borders may increase the risk of disclosure of information because the laws in those countries dealing with protection may not be as strict as in Canada. However, any information will be transferred in compliance with all relevant Canadian privacy laws.
When the results of this study are published, your identity will not be disclosed.
Collecting data using technology over the internet or using apps/tools/devices can increase potential risks to privacy and confidentiality. This study will be using SurveyMonkey to collect data for this study. The data will reside on an external server and no assurance can be made about its confidentiality or that it will only be used for this research purpose. Please read the terms and agreement of the service provider for further information regarding data security and confidentiality of the technology being used. This study will be using U.S. based internet service providers which means that the electronic data will be stored and accessed in the U.S. and is therefore subject to U.S. laws including the U.S Freedom Act. The Freedom Act allows authorities access to the records of internet service providers. It is therefore possible that this information could be disclosed to U.S. federal officials.
ARE THERE ANY CONFLICTS OF INTEREST/RELATIONSHIPS?
None of the investigators in this study have conflicts of interest.
WHAT ARE THE RIGHTS OF PARTICIPANTS IN A RESEARCH STUDY?
You have the right to ask questions and to receive answers throughout this study.
If you have any questions about this study you may contact the person in charge of this study (Principal Investigator) Dr. Ilana Halperin, Sunnybrook Health Sciences Centre, 2075 Bayview Ave., Room H121, Toronto, ON, Canada, M4N 3M5, Email: ilana.halperin@sunnybrook.ca
The Sunnybrook Research Ethics Board has reviewed this study. If you have questions about your rights as a research participant or any ethical issues related to this study that you wish to discuss with someone not directly involved with the study, you may call the Chair of the Sunnybrook Research Ethics Board at (416) 480-6100 ext. 88144.