Secondary Care
1.
How would you rate your overall care?
Very poor
1 star
Poor
2 stars
Average
3 stars
Good
4 stars
Excellent
5 stars
2.
How would you rate communication?
Very poor
1 star
Poor
2 stars
Average
3 stars
Good
4 stars
Very good
5 stars
3.
Was your diagnosis/ condition explained in a way you could understand?
Yes
No
Comment
4.
Were you given the opportunity to ask questions?
Yes
No
5.
Were your treatment options explained clearly to you?
Yes
No
6.
Were the potential benefits and side effects of any medication / treatment explained clearly to you?
Yes
No
7.
Were you actively involved in your treatment plan? ( i.e. explanation of why it is necessary, effects, long-term goals?)
Yes
No
8.
Were you given a review appointment before leaving clinic or at time of telephone review?
Yes
No
9.
Were you given clear details of who to contact if you experienced difficulties with treatment before next hospital review?
Yes
No
10.
Were you given details of who to contact should your symptoms worsen or you have concerns about your illness before next hospital review?
Yes
No
11.
Were you given clear details of HOW to contact this resource?
Yes
No
12.
Do you feel you receive emotional/ psychological support to help manage your condition
Yes
No
13.
Do you think this type of support should be made available?
Yes
No
14.
Were you provided with written information about your condition?
Yes
No
15.
If no, how did you find out more information?
16.
Would you rather be provided with written information sheets or provided with a website to access at home?
Written
Website
Both
17.
Were you given information or support regarding third sector organisations? eg charities or self-help organisations?
Yes
No
18.
Are you treated at a specialised vasculitis clinic?
Yes
No
19.
What do you think are the most important things that we should be encouraging all teams to do when they care for patients with vasculitis?
20.
Is there anything else you would like to tell us about your experiences?
21.
Which health board are you treated in?
Current Progress,
0 of 21 answered
