1.
Clinical Trial Database for Prader-Willi Syndrome
The Foundation for Prader-Willi Research (FPWR) is conducting a feasibility study for developing a coordinated network of clinical trial centers for Prader-Willi syndrome (PWS).
As a first step, we would like to develop a database of clinical care centers interested in conducting clinical trials for PWS. Through this database, we aim to connect sponsors with appropriate sites, and help both sponsors and sites as well as PWS patients get the information, tools and resources they need. We anticipate that such a database will reduce costs and time and help streamline the development of clinical trials for individuals with PWS.
We would be very grateful if you could fill this short survey (no longer than 5 minutes) to help us determine your interest in participating in the development of a database of clinical trial centers for PWS.
For more information please contact:
Nathalie Kayadjanian, Ph.D.
Director of Translational Research
Foundation for Prader-Willi Research
nathalie.kayadjanian@fpwr.org
Priya Balasubramanian, Ph.D.
Associate Director of Translational Research Programs