Kidney Cancer Association: Patient Diagnosis and Treatment Experiences

The Kidney Cancer Association is interested in learning more about your diagnosis and treatment experiences. Your responses will help inform current and future patient and caregiver education and support opportunities provided by the KCA. Caregivers/family members can complete the survey on behalf of their loved one.

Aggregated responses may also be shared with KCA sponsors.

Question Title

* 1. Please select the type of kidney cancer you have been diagnosed with:

Clear Cell RCC

Papillary RCC

Chromophobe RCC

Collecting Duct RCC

Renal Medullary Carcinoma

Translocation RCC

Unclassified RCC

Wilms Tumor

Oncocytoma

Renal Sarcoma

Unsure

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* 2. What was your kidney cancer stage at diagnosis?

Stage I (1)

Stage II (2)

Stage III (3)

Stage IV (4)

Unsure

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* 3. What is your current/most recent kidney cancer stage? [Note: No evidence of disease (NED) is a milestone that can be achieved at any stage of cancer, and it doesn't necessarily change the cancer stage.]

If completing this for your loved one who has passed away, please provide the last stage noted by their provider.

Stage I (1)

Stage II (2)

Stage III (3)

Stage IV (4)

Unsure

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* 4. Are you currently undergoing treatment for kidney cancer?

Yes

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* 5. What was the length of time between your first symptoms of kidney cancer to diagnosis?

Didn’t experience any symptoms/kidney cancer found during testing of another condition

Less than 1 month

1-6 months

7-12 months

13-18 months

19-24 months

24+ months

Question Title

* 6. What was the length of time between receiving your kidney cancer diagnosis to receiving your initial treatment?

Less than 4 weeks

4-6 weeks

7-9 weeks

10-12 weeks

13+ weeks

I haven’t started treatment yet

Question Title

* 7. If it took longer than 6 weeks to receive treatment, what caused the delay? [select all that apply]

Not applicable-received treatment within 6 weeks of diagnosis

Decided to 'watch and wait' (active surveillance/observation)

My insurance denied paying for treatment

I couldn’t afford the co-pay/co-insurance for appointments

I lacked reliable/affordable transportation to get to appointments

I was unsure of treatment because of side effects

I saw another doctor to get another opinion

No one called me to schedule

The next available appointment was greater than 6 weeks

I couldn’t take time off from work

I live a far distance from my provider and needed to arrange alternative housing close by

I lacked reliable/affordable options to take care of family members while I attended appointments

Other [please specify]

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* 8. Has your doctor ever discussed participating in a clinical trial with you?

Yes

Unsure

Question Title

* 9. Are you interested in learning about clinical trials?

Yes

Unsure

Please explain your answer:

Question Title

* 10. Would you be interested in participating in a clinical trial?

Yes

Unsure

Please explain your answer:

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* 11. Knowing what you know now, what is one question you wished you had asked your kidney cancer care team when you were first diagnosed?

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* 12. Knowing what you know now, what is one question you wished you had asked your kidney cancer care team when you were starting treatment?

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* 13. Knowing what you know now, what is one question you wished you had asked your kidney cancer care team when you completed treatment?
[Note: if you're still undergoing treatment, you can answer with a question you would like to ask]

Question Title

* 14. If you'd like to receive communications from the Kidney Cancer Association, please provide your contact information

First Name

Last Name

ZIP/Postal Code

Country

Email Address

Kidney Cancer Association: Patient Diagnosis and Treatment Experiences

Question Title

* 1. Please select the type of kidney cancer you have been diagnosed with:

Question Title

* 2. What was your kidney cancer stage at diagnosis?

Question Title

Question Title

* 4. Are you currently undergoing treatment for kidney cancer?

Question Title

* 5. What was the length of time between your first symptoms of kidney cancer to diagnosis?

Question Title

* 6. What was the length of time between receiving your kidney cancer diagnosis to receiving your initial treatment?

Question Title

* 7. If it took longer than 6 weeks to receive treatment, what caused the delay? [select all that apply]

Question Title

* 8. Has your doctor ever discussed participating in a clinical trial with you?

Question Title

* 9. Are you interested in learning about clinical trials?

Question Title

* 10. Would you be interested in participating in a clinical trial?

Question Title

* 11. Knowing what you know now, what is one question you wished you had asked your kidney cancer care team when you were first diagnosed?

Question Title

* 12. Knowing what you know now, what is one question you wished you had asked your kidney cancer care team when you were starting treatment?

Question Title

* 13. Knowing what you know now, what is one question you wished you had asked your kidney cancer care team when you completed treatment?[Note: if you're still undergoing treatment, you can answer with a question you would like to ask]

Question Title

* 14. If you'd like to receive communications from the Kidney Cancer Association, please provide your contact information

* 13. Knowing what you know now, what is one question you wished you had asked your kidney cancer care team when you completed treatment?
[Note: if you're still undergoing treatment, you can answer with a question you would like to ask]