O.I. wish orthopaedic surgeons had better strategies to help with...
1.
Please mark below how important to you or your child it is to improve care in each of these areas:
Below, ”you” refers to you or your child for whom you are completing this survey. You may complete the survey multiple times – once for each family member with OI.
EXTREMELY IMPORTANT TO IMPROVE
VERY IMPORTANT TO IMPROVE
COULD BE HELPFUL
NOT NECESSARY TO IMPROVE
NOT IMPORTANT – ALREADY WORKED OUT WELL
Managing fractures that don’t need surgery
EXTREMELY IMPORTANT TO IMPROVE
VERY IMPORTANT TO IMPROVE
COULD BE HELPFUL
NOT NECESSARY TO IMPROVE
NOT IMPORTANT – ALREADY WORKED OUT WELL
Managing fracture pain
EXTREMELY IMPORTANT TO IMPROVE
VERY IMPORTANT TO IMPROVE
COULD BE HELPFUL
NOT NECESSARY TO IMPROVE
NOT IMPORTANT – ALREADY WORKED OUT WELL
Managing bone pain
EXTREMELY IMPORTANT TO IMPROVE
VERY IMPORTANT TO IMPROVE
COULD BE HELPFUL
NOT NECESSARY TO IMPROVE
NOT IMPORTANT – ALREADY WORKED OUT WELL
Knowing when to perform rodding surgeries of arms
EXTREMELY IMPORTANT TO IMPROVE
VERY IMPORTANT TO IMPROVE
COULD BE HELPFUL
NOT NECESSARY TO IMPROVE
NOT IMPORTANT – ALREADY WORKED OUT WELL
Knowing when to perform rodding surgeries of legs
EXTREMELY IMPORTANT TO IMPROVE
VERY IMPORTANT TO IMPROVE
COULD BE HELPFUL
NOT NECESSARY TO IMPROVE
NOT IMPORTANT – ALREADY WORKED OUT WELL
Reducing the number of surgeries during childhood
EXTREMELY IMPORTANT TO IMPROVE
VERY IMPORTANT TO IMPROVE
COULD BE HELPFUL
NOT NECESSARY TO IMPROVE
NOT IMPORTANT – ALREADY WORKED OUT WELL
Decreasing anxiety around fractures and surgeries
EXTREMELY IMPORTANT TO IMPROVE
VERY IMPORTANT TO IMPROVE
COULD BE HELPFUL
NOT NECESSARY TO IMPROVE
NOT IMPORTANT – ALREADY WORKED OUT WELL
Managing post-operative pain
EXTREMELY IMPORTANT TO IMPROVE
VERY IMPORTANT TO IMPROVE
COULD BE HELPFUL
NOT NECESSARY TO IMPROVE
NOT IMPORTANT – ALREADY WORKED OUT WELL
Easier postoperative splinting/immobilization
EXTREMELY IMPORTANT TO IMPROVE
VERY IMPORTANT TO IMPROVE
COULD BE HELPFUL
NOT NECESSARY TO IMPROVE
NOT IMPORTANT – ALREADY WORKED OUT WELL
2.
Have you been told that you could not have surgery or implants for a fracture or bowing due to being too young?
Yes
No
3.
If yes, which age range did this occur?
<5 years old
<4 years old
<3 years old
4.
Have you been told that you could not have surgery or implants for a fracture or bowing due to having bones that are too small?
Yes
No
5.
Do you or have you ever done aqua therapy?
Yes
No
Not sure
6.
Does your orthopaedic surgeon offer you surgery on long bones (femur, tibia, humerus) with telescoping (ie FD rods, Bailey-Dubow) rods?
Yes
No
Not sure
7.
Does your orthopaedic surgeon offer you surgery on long bones (femur, tibia, humerus) with non-telescoping rods (ie SLIM nail, k-wire, Williams rod)?
Yes
No
Not sure
8.
What type of OI do you have?
Type I
Type III
Type IV
Type V
Type VI
Type VII
Type VIII
Other
Not sure
9.
What is your OI severity?
Mild
Moderate
Severe
10.
What is your age? (in years)
11.
How do you move about outside the your home? (check all that apply):
Walk independently
Walker
Manual wheelchair
Power wheelchair
12.
Please include any comments you would like to pass along:
Current Progress,
0 of 12 answered