What should be expected from a centre of excellence in parathyroid surgery ?
I would be very grateful if you can respond to the following questions based on your personal journey from reaching a diagnosis to having treatment for primary hyperparathyroidism (PHPT).
In an effort to improve the delivery of surgical care for primary hyperparathyroidism, there is a debate about criteria that would define a centre of excellence. No such centres have been recognised so far as there is no mechanism in place for such a process.
The following questions explore the views of patients affected by this condition. The aim is to reach patients from many countries - please forward a link to this survey to anybody else you know to be suffering form this condition.
A summary of the information collected will be discussed with members of the European Society of Endocrine Surgeons during the plenary meeting in May 2024.