2024 EDS Awareness Topics for Content
1.
Select from the list below for topic ideas you'd like to be included in an upcoming issue (check all that you're interested in)
Regenerative Medicine: PRP, Prolotherapy, and Stem Cell Therapy
Predatory Practitioners and the Warning Signs to Watch For
Common Gastrointestinal Comorbidities with EDS
How to Stand Up to POTS
Unravelling Tethered Cord: Understanding If You Have It, Diagnosis and Treatment
Pain Planning Before the Flare Strikes
Fatigue Management with EDS
Hypermobile and Hypersensitivity: Explore the Links Between hEDS, Sensory Issues, and Neurodivergence
Pacing and Energy Conservation with Chronic Illness
Mindfulness as Medicine
Low-Histamine Diets
Vision Complications Post-Concussion, Stroke or Brain Injury
Patient Stories
Financial Management of Medical Bills
Tips on Filing for Disability
Gender-Bias in Healthcare
2.
What other topics would you like covered in future newsletters?
3.
What recommended resources do you need?
List of apps to better manage illness
List of books to learn about EDS
An online community forum to connect and share information
An app to manage symptoms, track medical data, and manage doctor appointments
An app to find EDS resources easily
Access to a support group
An online course to learn about EDS for patients
Educational resources I can share with my doctor or providers on EDS
Training for medical practitioners with CE's to foster awareness
Communication skills development for talking to doctors and telling my story
Other (please specify)
4.
Interested in new medical professional webinars on EDS-related topics?
A great deal
A lot
A moderate amount
A little
None at all
5.
Suggested providers to consider hosting or interviewing for webinars or Q&A? (include website or contact info)
6.
Do you have resources to contribute to Chronic Pain Partners by volunteering, contributing, or helping fundraise?
Yes
No
What ways can you help (provide email address)