Confidentiality
Confidentiality will be provided to the fullest extent possible by law. All data collected and contained in the study will be treated as confidential. The questionnaires will require participants to disclose their name and email address. To ensure the confidentiality of data both during the conduct of the research and in the release of its findings, these identifiers will then be coded, making it impossible to trace any data back to a specific individual. This process is necessary to remove participant data should they wish to withdraw from the study. Consistent with Statistics Canada guidelines for ensuring confidentiality in data, no cell sizes less than 5 will be reported or used in the description and analysis of the data. This practice ensures that it is impossible to trace any data back to a specific individual.
Participants consent to have their data used for the purpose of research in the form of a thesis (available through MSpace, University of Manitoba’s Institutional Repository), as well as academic outputs such as: presentations, conferences, and peer-reviewed publications. All results of the study will be presented as aggregate data, and no individual will ever be presented. No individual data will be presented during the dissemination of the results. Data will be stored for up to 5 years (August 2028), after which point the data will be destroyed.
The University of Manitoba Health Research Ethics Board (REB) may review records related to the study for quality assurance purposes. Individuals from the REB have a professional responsibility to protect your privacy.
All qualitative and quantitative data will be compiled and stored on secure servers, and password-protected computers and files that only the principal investigator – Jason Mergler, and advisor – Dr. Leisha Strachan, will be able to access. If any of your research records need to be copied to the REB, your name and all identifying information will be removed. No information revealing any personal information such as your name or email address will leave the University of Manitoba.