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Tinnitus Support Group Survey -- Madison
1.
What is the biggest challenge you face when seeking treatment for your tinnitus?
Lack of effective treatment options
Difficulty finding a qualified provider
My provider doesn’t understand tinnitus well
Fear that nothing will work, so I don’t seek treatment
Cost of treatment or insurance coverage issues
Other (please specify)
2.
What is the most frustrating part about the current tinnitus treatment options available to you? (Select all that apply)
Treatments don’t reduce my tinnitus enough
No single treatment plan works for everyone
Lack of clear guidance on what works
Too expensive or not covered by insurance
My doctor/audiologist doesn't offer many options
I haven’t tried treatment yet
Other (please specify)
3.
How well do you feel your healthcare provider understands and follows best practices for tinnitus care?
Not at all
Slightly
Somewhat
Mostly
Completely
What do you think would help healthcare providers improve their tinnitus care?
4.
What kind of guidance or support would help you better manage your tinnitus? (Select all that apply)
Access to a tinnitus specialist
Counseling or mental health support
More information about effective treatments
Hearing aids or sound therapy devices
Support groups or patient networks
A step-by-step treatment plan from my provider
Other (please specify)
5.
How do you think a structured tinnitus care network could help people who don’t have access to specialists?
More online education and support resources
Telehealth options for remote consultations
Better training for general healthcare providers
More funding for local clinics and hearing centers
Other (please specify)
6.
What improvements in tinnitus care would make the biggest difference in your daily life?
7.
What symptoms of tinnitus (or its effects) would you like research to address the most.
Loudness
Frequency of occurrence
Sleep disturbance
Hearing difficulties
Ability to concentrate
Other symptom or effect
8.
Would you be willing to share anonymized data about your tinnitus experience to help improve research and care?
Yes
No
What concerns do you have about sharing your data?
9.
If a new tinnitus patient healthcare system was created, what should it prioritize to improve care for patients?
Faster access to tinnitus specialists
More research on treatment effectiveness
A standardized care pathway for all patients
Support groups and patient education
Insurance coverage for more treatments
Other (please specify)
10.
If you could give direct input into the design of a new tinnitus patient healthcare system, what topics or concerns would you want addressed?