CNF Website Survey for Caregivers/Advocates

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* 1. I am a:

Parent

Caregiver (Please enter your relationship to the child you care for)

Advocate (Disease-specific organization or support group)

Advocate (Industry)

Other or please specify relationship to child

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* 2. What is the highest level of education you have completed or the highest degree you have received? (We are gathering these data to determine the appropriate reading level of future website content.)

Less than high school degree

High school degree or equivalent (e.g., GED)

Some college but no degree

Associate degree

Bachelor degree

Masters degree

Doctorate degree

Other (please specify)

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* 3. Please visit the following Disorder Directory page, which features 1) an ARTICLE on Infantile Spasms; 2) Family Stories; 3) Resources www.childneurologyfoundation.org/disorders/infantilespasms. How understandable is the ARTICLE content to you?

Extremely: The content is easy for me to understand.

Somewhat: Some of the content is beyond my understanding.

Not at all: Most of the content is beyond my understanding.

Other (Comments)

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* 4. Please visit the following Disorder Directory page, which features 1) an INFORMATIONAL OUTLINE on Creatine Deficiency Transporter (CTD) syndrome; 2) Family Stories; 3) Resources
www.childneurologyfoundation.org/disorders/creatinetransporterdeficiency. How understandable is the INFORMATIONAL OUTLINE to you?

Extremely: The content is easy for me to understand.

Somewhat: Some of the content is beyond my understanding.

Not at all: Most of the content is beyond my understanding.

Other (Comments)

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* 5. Which format do you prefer for the disorder summary?

Article

Informational Outline

Other (please specify)

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* 6. Please spend a few minutes browsing the Disorder Directory (articles, family stories, and resources tabs of a few disorders) www.childneurologyfoundation.org/disorders/.
How well does the Disorder Directory meet your needs as a caregiver or advocate?

Extremely wel

Somewhat well

Not at all well

Other (please specify)

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* 7. What tab did you find most helpful within a Disorder?

Articles

Family Stories

Resources

Other (please specify)

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* 8. Please rate the following attributes of the Disorder Directory:

	Below Average	Average	Great
Understandability of content	Understandability of content Below Average	Understandability of content Average	Understandability of content Great
Layout/design	Layout/design Below Average	Layout/design Average	Layout/design Great
Meeting my needs	Meeting my needs Below Average	Meeting my needs Average	Meeting my needs Great
Ease of navigation	Ease of navigation Below Average	Ease of navigation Average	Ease of navigation Great
Number of resources	Number of resources Below Average	Number of resources Average	Number of resources Great

Other (please specify)

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* 9. How much do you trust the information on our website?

A great deal

A lot

A moderate amount

A little

Not at all

Other (please specify)

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* 10. I access the Child Neurology Foundation website:

Weekly

Monthly

Annually

Never

Other (please specify)

CNF Website Survey for Caregivers/Advocates

Question Title

* 1. I am a:

Question Title

* 2. What is the highest level of education you have completed or the highest degree you have received? (We are gathering these data to determine the appropriate reading level of future website content.)

Question Title

* 3. Please visit the following Disorder Directory page, which features 1) an ARTICLE on Infantile Spasms; 2) Family Stories; 3) Resources www.childneurologyfoundation.org/disorders/infantilespasms. How understandable is the ARTICLE content to you?

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* 5. Which format do you prefer for the disorder summary?

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* 6. Please spend a few minutes browsing the Disorder Directory (articles, family stories, and resources tabs of a few disorders) www.childneurologyfoundation.org/disorders/.
How well does the Disorder Directory meet your needs as a caregiver or advocate?

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* 7. What tab did you find most helpful within a Disorder?

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* 8. Please rate the following attributes of the Disorder Directory:

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* 9. How much do you trust the information on our website?

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* 10. I access the Child Neurology Foundation website:

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* 11. What other topics/information would you like CNF’s website to provide?

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* 12. Do you have any other comments about how we can improve our website?

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* 1. I am a:

Question Title

* 2. What is the highest level of education you have completed or the highest degree you have received? (We are gathering these data to determine the appropriate reading level of future website content.)

Question Title

* 3. Please visit the following Disorder Directory page, which features 1) an ARTICLE on Infantile Spasms; 2) Family Stories; 3) Resources www.childneurologyfoundation.org/disorders/infantilespasms. How understandable is the ARTICLE content to you?

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* 5. Which format do you prefer for the disorder summary?

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* 6. Please spend a few minutes browsing the Disorder Directory (articles, family stories, and resources tabs of a few disorders) www.childneurologyfoundation.org/disorders/.How well does the Disorder Directory meet your needs as a caregiver or advocate?

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* 7. What tab did you find most helpful within a Disorder?

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* 8. Please rate the following attributes of the Disorder Directory:

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* 9. How much do you trust the information on our website?

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* 10. I access the Child Neurology Foundation website:

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* 11. What other topics/information would you like CNF’s website to provide?

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* 12. Do you have any other comments about how we can improve our website?

* 6. Please spend a few minutes browsing the Disorder Directory (articles, family stories, and resources tabs of a few disorders) www.childneurologyfoundation.org/disorders/.
How well does the Disorder Directory meet your needs as a caregiver or advocate?