Objective:
The primary objective of this educational series is to empower patients and their families with knowledge and resources related to TSC. It aims to increase understanding about TSC, its symptoms, treatments, and management strategies. Additionally, it seeks to foster a supportive community for individuals affected by TSC. As team of health care professionals working with TSC patients ,we are initiating a needs assessment survey aimed at better understanding and addressing the specific gaps and challenges identified by our patients and their families.
TSC Educational Series Committee:
· Maria Zak, Nurse Practitioner, The Hospital for Sick Children
· Dr Mark Keezer, CHUM, Montreal, Quebec
· Dr. Maryam Nabavi, London Health Sciences Centre, London, Ontario
· Dr. Robyn Whitney, McMaster University, Hamilton, Ontario