Services for adolescents and young adults (AYA) with organ transplants in Australia and New Zealand

Dear Colleague,

It is well-documented that adolescents and young adults (AYA) with solid organ transplants face unique challenges and often experience poorer long-term outcomes compared to other age groups. To address this the TSANZ AYA Working group is conducting a survey aimed at understanding the current clinical practices and services available for AYAs aged 14-25 years living with solid organ transplants in Australia and New Zealand. Your insights are essential in improving care for these young patients as they transition through this critical phase of life.

Purpose of the Study:

The main objectives of this survey are to:
  1. Map existing services: Understand the structure and delivery of dedicated services that support AYA with solid organ transplants across various institutions.
  2. Identify practices and protocols: Examine the specific practices, support systems, and transition protocols from pediatric to adult care for AYA in transplant programs.
  3. Highlight gaps and opportunities: Identify areas of consistency, variability, and potential gaps in services provided to AYA.
  4. Gather recommendations: Collect suggestions on how to enhance services for AYA living with transplants and improve overall care.

Participation Details

Participation involves completing an online survey that will take approximately 20 minutes. The survey will focus on:
  • The services and protocols available at your institution for AYA living with solid organ transplants.
  • Challenges and gaps you’ve encountered in providing services to AYA's living with a solid organ transplant.
  • Your suggestions for improving AYA transplant services.
Potential Risks and Benefits:

Risks: There are no expected risks associated with participating in this study.
Benefits: Your contribution will help improve the understanding of current clinical practices and potentially inform the development of future guidelines and best practices for AYA transplant care.

Voluntary Participation:
Participation in this study is entirely voluntary. You are free to decline or withdraw at any time without any consequences.
This study is investigator-initiated and has no external funding. If you have any questions or concerns regarding the study, please contact the chief investigator, Dr Miranda Paraskeva m.paraskeva@alfred.org.au. This study has been approved by the ethics committee of Alfred Health.

Consent to Participate:
By proceeding to the survey, you confirm that you have read and understood the information provided and voluntarily agree to participate in this study.

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