Lupus UK want to hear from the whole lupus community, to help us understand what we need to focus on to support the needs of people with lupus and those who support them. We will be using this information to develop our aims and priorities for the next five years. Your voice matters, and we are listening.
You can read more about what we're doing on our website here: Information about Life With Lupus survey
This survey will ask you about your needs and what is important to you as someone with lupus, or caring for someone with lupus, and what you think Lupus UK should be doing to support the lupus community. There are three sections:
- Section 1: Your life with lupus
- Section 2: Lupus UK
- Section 3: About you
All questions are optional so you can leave questions blank if you choose, or skip sections by scrolling to the bottom of a page and clicking “next” to go to the next page.
The survey is anonymous, so we will not be able to link your answers to you.
If you support people with lupus in a professional capacity, such as working as a healthcare professional or a researcher, you are welcome to complete our professionals survey here: Survey for professionals who support people with lupus