AMDF Macular Degeneration Patient Experience Survey Thank you for participating in our survey! Your responses will help us direct resources toward developing solutions for people living with and affected by AMD. If you would like to see the results of this survey, and/or join our mailing list, please provide your contact information at the end.Your participation is greatly appreciated and has the potential to help many people. OK The first 8 questions are about your initial diagnosis appointment. OK Question Title * 1. When did you receive your initial diagnosis of age-related macular degeneration (AMD)? OK Question Title * 2. At what age did you receive your initial diagnosis of AMD? 35-45 45-55 55-65 65-75 75 or later other _______ OK Question Title * 3. Did you receive an initial diagnosis of Age-related macular degeneration (AMD) as the result of a routine eye exam, or because you noticed a change in your vision? Routine eye exam Requested eye exam due to vision changes Other (please describe) OK Question Title * 4. If you noticed a change in your vision, was it: Difficulty driving at night Straight lines appeared wavy The center of your vision became blurry and did not clear up Other (please describe) OK Question Title * 5. If your doctor recommended any treatment at your diagnosis appointment, were there questions about the treatment you did not ask? Yes No OK Question Title * 6. Did you have questions about your treatment that you did not ask? Yes No OK Question Title * 7. Did you feel comfortable asking questions during your diagnosis appointment? Yes No OK Question Title * 8. If you did not feel comfortable asking questions at your AMD diagnosis appointment (select all that apply): Were you too overwhelmed to ask questions? Did you feel rushed or that you had so many questions that you could not ask all of them? Did you feel that the doctor was too busy for you to ask all of your questions? OK The next set of questions is about your current treatment plan. OK Question Title * 9. When you go to your eye specialist are you accompanied by someone who acts as your advocate and can take in information or ask questions if you are too stressed at the time? Yes No OK Question Title * 10. Do you always report changes in your vision between scheduled visits? Yes No OK Question Title * 11. If you do not report changes in your vision between scheduled visits is it because (select all that apply): you are afraid of what you'll find out? you are afraid of having injections into the eye? you don't want to disappoint your doctor? you are depressed about having AMD? you do not think that your AMD vision loss will be that much worse by the time you get to your scheduled appointment? Other (please specify) OK Question Title * 12. Were lifestyle changes, such as exercise or losing weight, suggested as part of your treatment plan? Yes No OK Question Title * 13. Were nutritional changes suggested as part of your treatment plan? Yes No OK Question Title * 14. Are you receiving anti-VEGF eye injections as treatment for your wet AMD? Yes No OK Question Title * 15. If you are receiving anti-VEGF eye injections, how long do you expect to need these treatments? Every month for a few months and then you can stop. Every month for a few months and then you can start to slow down. Every month for a few months and then whenever your AMD shows signs of progressing. Other (please specify) OK Question Title * 16. What are your expectations of your treatment (select all that apply): Improvement of my eyesight. A halt to any further vision loss. A slowing of vision loss. A temporary halt in vision loss for a while and then a return to vision loss progression. Other (please explain) OK Question Title * 17. Were you told that, even with treatments to stop the wet form of AMD, your AMD might progress in ways that current treatments do not address? Yes No OK Question Title * 18. After an eye specialist consultation do you feel empowered to treat your AMD? Yes No OK Question Title * 19. Do you talk about the emotional aspect of living with AMD vision loss with (select all that apply): Your significant other Your family Your children Your friends A religious counselor A psychological counselor Your eye care specialist OK Tell us a little more about your experience OK Question Title OK Question Title * 20. You often see examples of AMD vision loss represented by photos with the center blacked out or blurred, but this is an oversimplification of what people with AMD experience. Can you describe what your vision loss “looks” like? OK Question Title * 21. While most people can understand the bigger aspects of vision loss, like losing the ability to drive or read, it’s often little things that our loved ones and the public-at-large don’t understand about vision loss. What are the every day “little” obstacles/frustrations you face as a result of vision loss due to AMD? OK Question Title * 22. Is there anything else you would like to add? OK Question Title * 23. Thank you again for filling out our survey! We hope this will lead to important insights about patient care and experience. If you'd like to see the results of the survey and/or join our mailing list, enter your information below. We won't share your personal information with any other party, and you can opt out at any time. We respect our email subscribers with relevant information. Name Email Address OK DONE