ALAB Community Feedback Survey

The mission of CRN's Adult Leadership Advisory Board (ALAB) is to share our stories and strength to educate, motivate and empower the entire cystinosis community. This survey will allow you to provide feedback on any ALAB projects you have taken part in, and give us ideas about new projects and topics that need (more) attention. Thank you for your participation!

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* 1. What ALAB projects did you take part in today/recently?

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* 2. When did you participate In the ALAB project? (For CystinosisTEENS on Instagram, list when you joined, or a recent date you posted)

Date / Time

Date

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* 3. Did your participation...

	Very Much	Yes	Somewhat	Not that Much	No, not at all	N/A
Provide knowledge that will assist you in managing your cystinosis?	Provide knowledge that will assist you in managing your cystinosis? Very Much	Provide knowledge that will assist you in managing your cystinosis? Yes	Provide knowledge that will assist you in managing your cystinosis? Somewhat	Provide knowledge that will assist you in managing your cystinosis? Not that Much	Provide knowledge that will assist you in managing your cystinosis? No, not at all	Provide knowledge that will assist you in managing your cystinosis? N/A
Provide emotional support that will assist you in managing/living with your cystinosis?	Provide emotional support that will assist you in managing/living with your cystinosis? Very Much	Provide emotional support that will assist you in managing/living with your cystinosis? Yes	Provide emotional support that will assist you in managing/living with your cystinosis? Somewhat	Provide emotional support that will assist you in managing/living with your cystinosis? Not that Much	Provide emotional support that will assist you in managing/living with your cystinosis? No, not at all	Provide emotional support that will assist you in managing/living with your cystinosis? N/A
Provide resources that will assist you in managing/living with your cystinosis?	Provide resources that will assist you in managing/living with your cystinosis? Very Much	Provide resources that will assist you in managing/living with your cystinosis? Yes	Provide resources that will assist you in managing/living with your cystinosis? Somewhat	Provide resources that will assist you in managing/living with your cystinosis? Not that Much	Provide resources that will assist you in managing/living with your cystinosis? No, not at all	Provide resources that will assist you in managing/living with your cystinosis? N/A
Provide connection with other peers living with cystinosis?	Provide connection with other peers living with cystinosis? Very Much	Provide connection with other peers living with cystinosis? Yes	Provide connection with other peers living with cystinosis? Somewhat	Provide connection with other peers living with cystinosis? Not that Much	Provide connection with other peers living with cystinosis? No, not at all	Provide connection with other peers living with cystinosis? N/A
Provide a benefit you were looking for?	Provide a benefit you were looking for? Very Much	Provide a benefit you were looking for? Yes	Provide a benefit you were looking for? Somewhat	Provide a benefit you were looking for? Not that Much	Provide a benefit you were looking for? No, not at all	Provide a benefit you were looking for? N/A
Provide a benefit you did not expect?	Provide a benefit you did not expect? Very Much	Provide a benefit you did not expect? Yes	Provide a benefit you did not expect? Somewhat	Provide a benefit you did not expect? Not that Much	Provide a benefit you did not expect? No, not at all	Provide a benefit you did not expect? N/A

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* 4. In your opinion, how can we address the community’s needs better? Suggestions welcome!

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* 5. What current ALAB projects do you enjoy and why?

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* 6. What topics would you like ALAB to explore?

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* 7. How were you informed about ALAB projects?

Facebook

Newsletter

Word of mouth

Friend

Family

Ongoing participant

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* 8. How old are you?

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* 9. THANK YOU FOR COMPLETING THIS SURVEY.
Would you like to be entered in a raffle to win an Amaon gift card?

Yes

ALAB Community Feedback Survey

Question Title

* 1. What ALAB projects did you take part in today/recently?

Question Title

* 2. When did you participate In the ALAB project? (For CystinosisTEENS on Instagram, list when you joined, or a recent date you posted)

Question Title

* 3. Did your participation...

Question Title

* 4. In your opinion, how can we address the community’s needs better? Suggestions welcome!

Question Title

* 5. What current ALAB projects do you enjoy and why?

Question Title

* 6. What topics would you like ALAB to explore?

Question Title

* 7. How were you informed about ALAB projects?

Question Title

* 8. How old are you?

Question Title

* 9. THANK YOU FOR COMPLETING THIS SURVEY.Would you like to be entered in a raffle to win an Amaon gift card?

* 9. THANK YOU FOR COMPLETING THIS SURVEY.
Would you like to be entered in a raffle to win an Amaon gift card?