AAKP Flash Survey - Living Organ Donor Protections, Disparities in Living Organ Donation and Transplantation in Communities of Color, and Investments in Kidney Research
1.
If the U.S. Congress passed a law that offered comprehensive insurance protections for all living organ donors (prohibiting discrimination through higher premium rates, cancellation of coverage or denial of coverage for health, disability, and life insurance because a person donated an organ), do you think more people would donate life-saving kidneys for patients in need of a pre-emptive transplant or patients who have been waiting on a transplant list?
Yes
No
Uncertain
2.
Federal government data shows historical disparities in living organ donation and kidney transplantation within communities of color. Do you believe the U.S. Congress has a responsibility to help end these historical disparities through laws that remove barriers to and encourage greater living organ donation, protect living organ donors, and lead to increased transplantation in communities of color?
Yes
No
Uncertain
3.
If an elected leader said they supported a law that protected all living organ donors, would you expect that law to protect donors regardless of whether they were currently insured by a health, disability, or life insurance policy?
Yes
No
Uncertain
4.
If an elected leader said they supported a law that protected all living organ donors, but you later found out the elected leader
knew
that law
only
protected
currently
insured
organ donors and
not
uninsured
organ donors, would you view the statement of the elected leader as:
Accurate
Less than accurate
Neutral
Somewhat misleading
Misleading
5.
If a national kidney advocacy group supported a law that protected all living organ donors, would you expect that law to protect donors regardless of whether they were currently insured by a health, disability, or life insurance policy?
Yes
No
Uncertain
6.
If a national kidney advocacy group claimed they helped pass a law that protected living organ donors, but you later found out the advocacy group
knew
that law
only
protected
currently insured
organ donors and
not uninsured
organ donors, would you view the statement of the advocacy group as:
Accurate
Less than accurate
Neutral
Somewhat misleading
Misleading
7.
If the U.S. Congress passed a law that
only
protected currently insured living organ donors, and
did not
protect uninsured Americans who can be living organ donors, do you think:
More people would become living organ donors
Less people would become living organ donors
There would be no change in the number of living organ donors
8.
If the U.S. Congress passed a law that
only
protected currently insured living organ donors, and
did not
protect uninsured Americans who can be living organ donors, do you think:
Living organ donation and rates of transplantation would go up in communities of color
Living organ donation and rates of transplantation would go down in communities of color
Living organ donation and rates of transplantation would stay the same in communities of color
9.
If national elected leaders and national kidney advocacy groups explained a living donor protection law clearly and precisely detailed what types of people were covered (insured Americans) and who was not covered (uninsured Americans), would you view that elected leader or group as:
Transparent and accurate
Somewhat transparent and accurate
Neutral
Less than transparent and somewhat misleading
Not transparent and misleading
10.
If a special interest pressured your elected Congressional leader to pass a living organ donor protection law that
only
protected currently insured living donors, leaving uninsured living organ donors unprotected from
future
discrimination through higher rates for or denial of coverage of health, disability, and life insurance, would you:
(Please check all that apply.)
Be less active in encouraging people in your community to become living organ donors
Be reluctant to tell potential living organ donors they were protected by law
Make your opinion about special interest interference known on social media
Make your opinion about your elected leader known on social media
Hold your elected leader accountable for not fully removing a barrier to living organ donation
Get more involved in advocacy efforts to protect all living organ donors
Volunteer time or donate to kidney advocacy groups willing to fight special interests
Volunteer time or donate to kidney advocacy groups that hold elected leaders accountable
11.
The technology that supports kidney dialysis is nearly 50 years old, the cost of dialysis in America is estimated at close to $30 billion a year, and Americans' mortality on dialysis is extremely high. The American Association of Kidney Patients, as part of our
Decade of the Kidney (TM)
initiative, believes the time is now for bipartisan action to
substantially increase
Federal investments in kidney disease research and to accelerate innovations aimed at preventing, detecting earlier, and treating kidney disease. Do you think a substantial increase in research spending can lead to improved kidney disease detection, new treatments including better transplantation techniques, and improved patient outcomes?
Yes
No
Uncertain
Current Progress,
0 of 11 answered