AAKP Flash Survey - Living Organ Donor Protections, Disparities in Living Organ Donation and Transplantation in Communities of Color, and Investments in Kidney Research

Question Title

* 1. If the U.S. Congress passed a law that offered comprehensive insurance protections for all living organ donors (prohibiting discrimination through higher premium rates, cancellation of coverage or denial of coverage for health, disability, and life insurance because a person donated an organ), do you think more people would donate life-saving kidneys for patients in need of a pre-emptive transplant or patients who have been waiting on a transplant list?

Yes

Uncertain

Question Title

* 2. Federal government data shows historical disparities in living organ donation and kidney transplantation within communities of color. Do you believe the U.S. Congress has a responsibility to help end these historical disparities through laws that remove barriers to and encourage greater living organ donation, protect living organ donors, and lead to increased transplantation in communities of color?

Yes

Uncertain

Question Title

* 3. If an elected leader said they supported a law that protected all living organ donors, would you expect that law to protect donors regardless of whether they were currently insured by a health, disability, or life insurance policy?

Yes

Uncertain

Question Title

* 4. If an elected leader said they supported a law that protected all living organ donors, but you later found out the elected leader knew that law only protected currently insured organ donors and not uninsured organ donors, would you view the statement of the elected leader as:

Accurate

Less than accurate

Neutral

Somewhat misleading

Misleading

Question Title

* 5. If a national kidney advocacy group supported a law that protected all living organ donors, would you expect that law to protect donors regardless of whether they were currently insured by a health, disability, or life insurance policy?

Yes

Uncertain

Question Title

* 6. If a national kidney advocacy group claimed they helped pass a law that protected living organ donors, but you later found out the advocacy group knew that law only protected currently insured organ donors and not uninsured organ donors, would you view the statement of the advocacy group as:

Accurate

Less than accurate

Neutral

Somewhat misleading

Misleading

Question Title

* 7. If the U.S. Congress passed a law that only protected currently insured living organ donors, and did not protect uninsured Americans who can be living organ donors, do you think:

More people would become living organ donors

Less people would become living organ donors

There would be no change in the number of living organ donors

Question Title

* 8. If the U.S. Congress passed a law that only protected currently insured living organ donors, and did not protect uninsured Americans who can be living organ donors, do you think:

Living organ donation and rates of transplantation would go up in communities of color

Living organ donation and rates of transplantation would go down in communities of color

Living organ donation and rates of transplantation would stay the same in communities of color

Question Title

* 9. If national elected leaders and national kidney advocacy groups explained a living donor protection law clearly and precisely detailed what types of people were covered (insured Americans) and who was not covered (uninsured Americans), would you view that elected leader or group as:

Transparent and accurate

Somewhat transparent and accurate

Neutral

Less than transparent and somewhat misleading

Not transparent and misleading

Question Title

* 10. If a special interest pressured your elected Congressional leader to pass a living organ donor protection law that only protected currently insured living donors, leaving uninsured living organ donors unprotected from future discrimination through higher rates for or denial of coverage of health, disability, and life insurance, would you:
(Please check all that apply.)

Be less active in encouraging people in your community to become living organ donors

Be reluctant to tell potential living organ donors they were protected by law

Make your opinion about special interest interference known on social media

Make your opinion about your elected leader known on social media

Hold your elected leader accountable for not fully removing a barrier to living organ donation

Get more involved in advocacy efforts to protect all living organ donors

Volunteer time or donate to kidney advocacy groups willing to fight special interests

Volunteer time or donate to kidney advocacy groups that hold elected leaders accountable

Question Title

* 11. The technology that supports kidney dialysis is nearly 50 years old, the cost of dialysis in America is estimated at close to $30 billion a year, and Americans' mortality on dialysis is extremely high. The American Association of Kidney Patients, as part of our Decade of the Kidney (TM) initiative, believes the time is now for bipartisan action to substantially increase Federal investments in kidney disease research and to accelerate innovations aimed at preventing, detecting earlier, and treating kidney disease. Do you think a substantial increase in research spending can lead to improved kidney disease detection, new treatments including better transplantation techniques, and improved patient outcomes?

Yes

Uncertain