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Parent/Carer and Young Person Expression of Interest Survey - for the Paediatric Palliative Care National Action Plan Project
A paediatric project focused on improving palliative care for infants, children, and young people
The success of this project relies on hearing what matters to you and your family.
Your experiences as a consumer or carer are the best evidence we will have to drive improvement in the quality of, and access to, palliative care throughout Australia.
Palliative Care Australia (PCA) and Paediatric Palliative Care Australia and New Zealand (PaPCANZ) are working together with an experienced group of professionals to deliver the Paediatric Palliative Care National Action Plan to improve palliative care for infants, children and young people and their families.
Central to the project is hearing what matters to you and your family. Your experiences, as a consumer or carer, are the best evidence we will have to drive improvement in the quality of, and access to, palliative care throughout Australia.
Through completing this survey consumers can nominate to participate in consultation opportunities through either group or one-on-one consultations or online survey. Once consultation registrations are open the project team will invite consumers who have expressed an interest in participating to register for one of the consultation opportunities.
Participation in this research is voluntary. If you don’t wish to take part, you don’t have to.
You can withdraw from the consultation at any time. If you decide to take part and later change your mind, you are free to withdraw from the project at any stage.
Bellberry Human Research Ethics Committee has approved the Paediatric Palliative Care National Action Plan Project.
Any personal information will be used only for the purpose of your participation in the consultation and in accordance with the PCA Privacy Policy which can be found at palliativecare.org.au/palliative-care-australia-privacy-policy.