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* 1. Please select the situation that best applies to you.

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* 2. Have you completed a patient registry for your child?

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* 3. If you are a parent /caregiver and have not completed a patient registry, why?

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* 4. Please rank in order of your preference the forum/method you would like to use to learn about our research and medical news and updates.

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* 5. If you receive our newsletter, on a scale of 1-5 with 5 being completely satisfied, how would you rank the content of the newsletter?
If you do not receive the newsletter, please select N/A

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* 6. As we move towards more paperless engagement, please select your preference regarding the newsletter format:

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* 7. As a small nonprofit we have many needs and opportunities for community engagement such as participation in work groups led by a member of the LSA Board. 

If you would be interested in participating, please select one or more of the following areas of interest/expertise:

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* 8. Do you have a physician who wishes to learn more about LS or get more involved?

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* 9. If yes, please include the physician name and address or phone number or enter N/A if your previous answer was No:

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* 10. Would you like to be included in an member only online directory by state so that you can easily find other LS members?

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* 11. Would you be open to being a mentor for another LS family?

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* 12. Did you attend the 2022 LSA Conference in Dallas?

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