FMAware.org Survey

Thank you for participating in the NFA survey. Your feedback is very important to us here at the National Fibromyalgia Association. By participating in this poll you are providing your responses in a voluntary manner and in no way obligates the NFA or any of it's associated partners to pay you any financial compensation. Your help is very much appreciated.

WELCOME TO THE NATIONAL FIBROMYALGIA ASSOCIATION'S MAY 12TH
AWARENESS DAY SURVEY!

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* 1. What do you think are the top 2 concerns of FM patients in your community?

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* 2. Which statement best describes the attitude towards fibromyalgia (FM) patients in your community:

FM patients are crazy and lazy. It is not recognized as a real condition.

FM patients might have a real condition, but they are overreacting and are too needy.

Most people believe FM patients are suffering but doctors and others do not know what to do to help.

FM patients are suffering from chronic pain and more needs to be done to care for them

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* 3. Fibromyalgia is a:

Psychological Condition

An Autoimmune Condition

A pain condition that involves the deterioration of one’s muscles and joints

Disordered pain processing in the Central Nervous System

A form of Lupus

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* 4. How interested are you in learning about integrated approaches (nutrition, cognitive behavior therapy, exercise, acupuncture, meditation) for helping improve your FM?

0-20%

21%- 40%

41% -60%

61% - 80%

81% - 100%

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* 5. How important is it for you to be able to have conversations with other FM patients to learn and share information about your health in order to help one another?

Very Important

Somewhat Important

A little bit important

Not important

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* 6. Do you feel there is more understanding and better treatments for fibromyalgia today than there was 10 years ago?

Yes, things have improved a lot

Yes, a few things have improved

No, things are no different than they were 10 years ago

Things are worse now then what they used to be

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* 7. Please check all areas of research that you feel should be a priority in the treatment of FM & Pain:

Drug development for pain, sleep and fatigue

Brain studies to better understand the underlying process of pain

Pre-clinical and clinical trials with marijuana and its extracts to treat symptoms of illness and other conditions such as pain

The redesigning of opioids to relieve pain with less chance of addiction (Example: A pill that combines a lesser amount of an opioid and a non-addictive compound like acetaminophen)

The role of diet in the treatment of pain (Example: Looking at the molecular level of: polyunsaturated fatty acids, which can promote or lessen inflammation)

Research to expand personalized medicine (i.e.: Testing a person's genetics to find genetic mutations and bio-markers for predicting drug responses) so treatment would be more precise

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* 8. Which of these research areas do you think should be given the first and second priority and why?

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* 9. What do you think would help the FM community the most (only pick one!)

Better educated health care providers

Availability of medicinal marijuana

New pharmacological drugs

More generalized research

Access to more personalized health treatments

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* 10. Please enter your information if you would like to receive further information on new treatments for pain and if you would like to receive updates about the new website launch from our sister organization, the Community Pain Center. (ourcpc.com) Please note these are not required fields and will not have an impact on your poll responses. But would be appreciated by the NFA.

Name

Organization

State/Province

ZIP/Postal Code

Email Address

On behalf of the National Fibromyalgia Association (NFA) we want to thank you for your participation in this survey. Please know that your responses are confidential and anonymous.